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Showing posts from October, 2007

My bad mood is intensify with the pain

Bad mood turning into frustration and a bit of the 'why me' blues and some 'When will the pain fricken end today. I am in so much pain now, from fighting all day with semi-successful pain killer and then moving onto not at all successful ones. I am not sure I am going to be able to sleep.

I have tried two T3 to get me to work half way, then for the other half I turned to four Tylenol and three advil at migraine strength. And now I wish I could bash my head against the wall, it is so friggin intense. My eye sockets feel like they have been gouged out, the ligh sensitivity was bad but now diminished, my hearing cut out then came back with a piercing ringing in them. My chest hurts with piercing pain, which is not angina, but might be from the smoking patch...as it did not like me and vice versa. The back of my neck is killing me, with spiking pain upward when I move. Or spiking pain from the left to the right when I move. Trying not to move my head. When I l…

Migraine connect: For those that do not get it letter

We all get people who do not get it. And when you are struggling with treatment, work and the pain, the last thing you need is people not getting it. Sometimes it is the boss, I have a great one, but she is getting as fustrated as I am that we cannot resolve this treatment satisfactory fast enough. Sometimes it is a co-worker thinking you are using 'headaches' as an excluse... I thin k my co-workers are great, but they also are stress by now knowing when I will be at work and working for me. And sometimes it is actually the spouse who does not get it, which I also do not have thankfully, because I believe that would be the worst. Also doctors can not get it, they can be mis-informed and they can think you need a shrink or lower your stress. So this letter is for them all, give them the facts.

These are the key points in the letter, followed by the web link to it (that site is awesome for support and information.)

"Based on the most recent U.S. census statistics, Migr…

New York Times migraine article

An interesting essay and rather reminds me of me, except I have tried many more drugs and concoctions. It is a good thing to see though, an article written by someone who actually has chronic migraines. It helps with awareness of this disease and so people can comprehend it can be something that is chronic, difficult to treat, life altering and not just a 'headache'.

Migraine Diet

Earlier this week, I went to see my neurologist, who for months has been trying to get me to increase my dosage of amitriptyline or go on topamax, an anti-seizure drug that also prevents migraines.
“Are you enjoying your suffering?” he asked me.
Eagerly pocketing my topamax script, I asked him if he thought that food elimination could hold out any last hope.
Maybe, he said, smirking down into his notes; you never know. “You could always go up to Baltimore and ask Dr. Buchholz.”
Many people who take daily medications come at some point to hate them. Teenagers with ADHD routinely rebel against their meds…

Women, migraines and brain activity- Aug 15/07

Take a look at this:

Click here... article

Women may get more migraines than men because their brains are quicker to release the trigger that begins the migraine cycle.
Women are three times as likely as men to suffer from migraine headaches, and a new study suggests the reason may be that their brains are faster to activate the cascading waves of activity thought to cause migraine pain as well as other migraine symptoms.Researchers say migraines were once thought to be caused by constriction and dilation of blood vessels. But advances in brain imaging technology now suggest that migraines may start as a result of brain excitability. People with migraines show dramatic waves of brain activity that spread across the surface of the brain -- known as cortical spreading depression (CSD). This depression is thought to trigger not only the severe pain associated with migraines but also the visual symptoms, dizziness, and difficulty concentrating often associated with migraines.
In a study publi…

Botox- July 8/07

I can say one thing about botox for migraine prevention. It certainly does not work right away. I am not about to give up hope that it will work, but lets just say so far I have been enduring three days of nasty migraines. If you say 10 is the worst migraine I have ever experienced, then I have been on average a 7.5 these last three days... well beyond functioning. So no decrease in intensity so far nor even frequency.

If you are curious how getting a neurotoxin injected into your head muscles, rather than say directly into the brain, would have any effect on migraines there is actually no clear answer. I can understand how certain drugs affect migraines... affect the excitation of neurons firing and then the inflamation of blood vessels. But botox? Don't get it. Maybe for tension headaches. Anyway here is what I found about the how:

"Why does it work?Based on the mechanism of action of Botox, it is unlikely that anyone would have thought to try it for migraines. Its …

Botox in the brain- July 6/07

So getting needles in the head is decidedly unpleasant. Who would have thunk it? But I am not afraid of needles or minor fleeting pain. I am no sissy girly. Okay, I did cry a little and there was some begging for mercy, but other than that, super cool.

So looks like I am going to have a numb forehead for six months. Even if you scare the jeejeebee's out of me, I will not look suprised. The neuro warned me explicitly not to rub my head in the next 24 hours, or a might push the botox down and thus have an eye lid drooping for three months... not a sexy look on anyone really. And this makes me a little paranoid about sleeping... given I smoosh my head into the pillow and toss and turn erratically all night long. I just might wake up with drooping eye lids and an ear at my chin.

The neuro said we should see results in two weeks, although I should see some change by the time I go back to work. He said it works on 3 out of 4 people, although not everyone can afford it (400 buc…

Basilar artery migraines- June 2/07

I am curious as to whether I am getting migraines of this type. It is one of the more rare ones, so not likely. Still makes for an interesting post, there are types of migraines and types of treatment, always a good thing to keep in mind. I was originally diagnosed with transformed migraines, because of the changes in symptoms and varying intensity of attacks, as well as increasing frequency. Which makes a lot of sense when you consider the sleeping disorder I have. However, it does not make much sense when you consider the whole angina chest pain symptom or the loss of consciousness episode. Nor even some of the more profoundly neurological migraines I have had, since generally you are looking for a decrease in symptoms overall, not an increase in some and a randomness to others.

Basilar artery migraines:

"The neurological deficits accompanying BAM usually include partial or total greying or loss of vision, disturbances in oculomotor function (such as double vision), verti…

Types of Migraines - May 25/07- My personal classification

I have an aura so bad right now I have lost the vision in half my left side. It is a warping, flashing, twisting light. I rarely get auras this intense. Although once in awhile I will lose sight in one eye, for about fifteen minutes. When this one started it was just at the lower left of my visual field, and I kept looking that was because I kept thinking I saw something move. Then it expanded and I could see the sparkling edge of it throughout, as well as this flickering and liquid part of it on the left. With an aura like this, it would be a very good time to take an abortive. Pity I do not have one. We will see what kind of dent these painkillers have on this type of migraine.

Let me educate you on my types of migraines. There seem to be certain types that hit me and I have personally made my own classifications.

1)The migraine without aura- Mild, moderate or acute. Can have any of the other symptoms (nausea and light sensativity) or none at all. Tends to grow in strength slowly ov…

Short term disability leave- May 25/07

The leave of absence I have been trying to avoid at work, is, well, here. Which is a really good thing considering the whole inability to sleep thing, the midnight migraines and the not so pleasant nausea I have going on. As soon as I can arrange to get the botox injections I will be set and hopefully they are covered on my plan. Just in case you are looking to get botox for other reasons, it costs 400-500 for the botox and my neuro said for cosmetic botox they tend to charge about a 100 bucks to inject it, but since he does it for medical reasons he does not charge. I still need to set up a chiro appointment and... remember to go to it. And I still need to get my hair cut... again remembering the appointment helps. And just because life is like that, I also need to make a dentist appointment asap, since I have some killer pain in one tooth. I speculate it is a cavity, but since I have never had one I can't be sure, just going on that theory due to the pain.

Now I have fill…