Skip to main content

It is all about the pain... right?

It is all so very ironic. To have chronic pain, which because it is chronic, doctors do not actually want to treat with pain killers. Yet they have all sorts of neuro drugs that potentially may decrease the pain, as well as give you a crap load of side effects that range from problematic to horrific. So if you have chronic pain you are screwed, such is life, suck it up. The whole invisible disability gets in the way of things really. Although, frankly, sometimes not so invisible... as in having trouble getting up and down stairs, walking and so forth... you have no idea how hard it is to not tell people you have FMS while at the same time try and come up with a reason a young woman would have such trouble getting up stairs.

What is worse than that? The fact that doctors seem to think the pain element to FMS is what needs to be treated. As in, that is all. As in, if they somehow managed to treat the pain, even nullify it, you would be all chipper. How can you ignore the fact it is a syndrome? As in a crap load of symptoms and sometimes comorbid conditions. Oh, doctors chance the symptoms pretty good. They will put you on and off drugs and give you whiplash as they diagnose you with one thing after another and treat you. Until you can't tell the difference between side effects and symptoms, and begin to just ignore anything that is not overtly interfering. They chase branch after branch, and never look to the tree roots. If they even bother, at times they simply ignore the symptoms as well. But it is all about the whole package... you treat the pain, and the chronic insomnia, fatigue, neuro issues and so on and so on are still there. Every time I hear of this new drug to help with FMS pain I just cringe, because it is like they think that is all there is to it.

Not that it makes on bit of difference. I have not been actively treated for FMS, but the pain has begun to complicate things. Still, I don't want to get into that med spiral, when I am being treated for migraines, asthma and hypothyroidism... seriously how many drugs do they think they can pump into me before something breaks?
Post a Comment

Popular posts from this blog

Signs the pain is getting the best of you

100 Symptoms of Fibromyalgia

There was a site that had this and I had linked to it on Tumblr but it is gone. So I had to hunt down someone who found my post and posted the whole thing in a forum. Anyway it is around but I'm posting it here so I will not have to hunt it down to reference it. Now we all know the major symptoms are the wide-spread pain, but our pain isn't just muscle pain... it can be nerve types of pain as well, and the fatigue and the insomnia. And even among symptoms there are some far more frequent than others, but it should be said we have categories... like the cognitive dysfunction, which is a broad one that has more than one symptom and we often just say fibrofog. The insomnia... more than one sleeping disorder. So the list is interesting.

__ Fatigue, made worse by physical exertion or stress
__ Activity level decreased to less than 50% of pre-illness activity level
__ Recurrent flu-like illness
__ Sore throat
__ Hoarseness
__ Tender or swollen lymph nodes (glands), especiall…

Getting through the high intensity pain flares #Blogboost

The crowded me out of the brain. Making no room for anything else. Distraction was impossible. You feel almost frantic with the pain but must be still.

What do you do? To get through it when you have no distraction?

I ask me this as I am really in the depths of a 9 level frantic level of pain right now. Hoping maybe some writing will be a distraction, but it isn't. As I said, the pain crowds the brain. I have to focus real hard to write and my head isn't clear. Too much pain to focus well. Things become quite difficult to do. 

I will say this: We cannot function. We have to just cope with the pain.

But we are Immersed in the pain, we what do we do?
We can and should rest and get through it the best we can. Here are some of the things I do to get through it.

Relaxation breathing: I can't meditate when in high levels of pain. It just makes me think about how much pain I am in. Just not a good idea. But I do do relaxation breathing. I close my eyes. I focus on my breathing. I even…