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Showing posts from September, 2009

Bad migraine flare today...

I missed work today... and actually it seemed my body made up my mind before I did, since I failed to hear my alarm ring for forty minutes and woke up already late.  I remember waking up really slow wondering what the noise was and was shocked to realize what time it was when I figured out it was the alarm.  It was an insanely strong migraine, so I called in sick thinking some much needed sleep might kill it and I could go in later in the day.  Nope.  Slept quite a bit and woke up with it still there, just as strong and just as mind numbing.  And I had things to do today and two meetings, so feeling guilty about that and will not have fun tomorrow.  But I just could not do it.  It was that painful.  Around 7pm it tempered a bit, likely from the painkillers doing a decent job, but I still feel like I have a bruise in my head and my stomach still has not settled.  I was really trying to not miss work until I saw my neuro in december, but so much for that plan.

This brutal migraine is th…

Driving and migraines...

http://www.healthcentral.com/migraine/c/11175/85090/migraines-driving

Yep, always a concern for the chronic migraine sufferer.  I admit it is extremely difficult to work with chronic migraines.  We all know migraines can make us incapable of doing anything, but we also know that treated migraines, or half treated migraines, or mild migraines or silent migraines... are an entirely different story.  We are expected to function with these.  Expected to because no one says we can't and does not offer us any better solution, so we do the best we can.  Likewise with a full blown migraine, driving is impossible, but in those other cases not impossible, but obviously effected.  For example my most predominate visual aura is visual snow, and it is always there, but sometimes more extreme... so I see billions of little sparks of light zig zagging, flashing and darting around in my field of vision and it makes everything rather like a monet painting and distorted.  To drive at all, I need to…

Allrighty, I stopped procrastinating and forgeting

I finally made a neuro appointment.  My chronic migraines have been exceptionally chronic since march, or maybe before, but definately since march.  The only thing that has helped me survive work with these things is pain killers... and really, when it comes down to it they don't do enough.  I have been lately taking my abortive beyond the three times a week rule, because I forget how many times I have taken it until i start getting chest pains.  Plus triptans kick ass over pain killers any day of the week.  Still, now my lungs feel like I have a wee kick boxer in there trying to get out and that sort of piercing chest pain that is rather unpleasant.  So yesterday I did a drug free day, which, as you can imagine, was not exactly fun.  I thought a break would mean I could take a triptan today, but the side effects of that, ie the whole kick boxer in the lungs, hit me quite quickly and that suggests I need a bit of a break from that triptan.  The two options would be another triptan…

Missing my mind today

There is a point when memory glitches are less glitches and more a state of mind, as in a permanent state of mind.  Being forgetful is one thing, but forgetting to do important things and not even remembering later is quite another.  I forgot to pay the bills last month and had no idea they were not paid until I paid them this month.  I forgot I posted my last entry on here and was going to do it again... which would have been a tad bit confusing.  I have some serious problems with facial recognition... in my line of work I meet a lot of people, associate with them for a short term and can't be expected to remember them all.  I really don't remember any of them.  I keep getting people coming in and greeting me by name and I have no clue if I know them from work or elsewhere, they don't even look vaguely familiar.  I do recognize names, although don't connect them to faces and it takes a bit of jogging to get to the point where I can connect the name to the business I d…

National Invisible Chronic Illness Awareness Week

Shared by Teri Robert (thank you) - and completed by me:


30 Things About My Invisible Illness, Migraine, You May Not Know



Anyone who has Migraine disease or another headache disorder knows what it's like to live with an invisible illness. People can't see our illness. There are no outward signs. Invisible illnesses are easy for "healthy" people to ignore. This adds to the burden of disease and makes lives even more difficult.



Each year, National Invisible Chronic Illness Awareness Week is observed to educate the public and raise awareness about invisible illnesses. One of the blogging activities this year is a "meme," 30 Things About My Invisible Illness You May Not Know. So, here's my meme...



1. The illness I live with is: Migraine disease & Fibromyalgia

2. I was diagnosed with it in the year: 1997

3. But I had symptoms since: 1980

4. The biggest adjustment I’ve had to make is: trying to find a job I can hold.

5. Most people assume: that Migraines …

If it is not one thing it is something else

This FMS pain, I assume, is what is causing pain in my feet and wrists.  I have gotten a script for an anit-inflamatory cream which helps if I apply it three times a day.  Can my doctor explain this weird flare up of specific pain... no.  So, hope it goes away.  But it is not just that.  I find it difficult to do things that were not so difficult before.  My muscle endurance is shot, and my legs weak.  Keep getting those tingles and arms and legs falling asleep.  I totally drained myself washing the bathroom today, not to mention gimped up my already gimped wrist.

Migraine wise I had a few days off... which was a pleasant surprise   Then hormonal migraines.  Which are always brutal, but this time seeming to not last too long.  Three days instead of six.  I think this fall weather is awesome.  It is not too hot, not too cold and that is what my body likes.  There there is a season where the migraines are not so over blown.  Unfortunately, it is a short season.