Skip to main content

Time to muster the troops

Like I say, chronic migraines are not a battle, its a war. I am giving ground right now, losing more battles than I would like. Time to muster the troops and get that ground back. In times like this you have to consider what sort of things you can do to get back the stalemate stage or if you are lucky get your victory on.

I came up with three points of attack:

1) sleep: As a chronic insomniac due to the joys of fibromyalgia sleep is vital on too many levels to get into. The one that matters for my ability to actually get out of bed would be that sleep deprivation leads to midnight to morning migraines. When migraines hit you when your down, its damn hard to get up. Its like a sneak attack there is no defense against. Plus leads to, in my case, some very fun alice in wonderland syndrome. I already nap and nap and nap, so adding nap time would cut into other stuff time. I am already on a sleeping pill, which you would think would be sufficient, but my insomnia is uber strong. So my doc scribed me a med to add to the affect of sleepiness to add to the sleeping pill. And it does work, but it also has too many side effects. So not a daily thing... but nonetheless helps me get sleep when I really need it, like when I have a migraine at bed time.

2) Neck pain: The reason I have been getting even less sleep than usual is that my neck has been hurting constantly. This is a consequence of having a long and terrible migraine streak and is quite common. Pain makes muscles tense which gimps muscles. Last time it happened every time I got a migraine my shoulder hurt so much I could barely move my arm. This time it seems to be staying in the neck area but is giving me a constant headache and makes it very difficult to sleep. So solution number 2 is fix the neck by going to massage therapy.

3) Medication: If something is not working I have to change it as soon as humanly possible, since if it stops working or while waiting for a new one to kick in things could get bad very fast. For the first step I changed my triptan abortive, on the off chance I was just getting used to my other one. Second step was to talk over my preventatives with my neuro, but since I do not answer my phone, like ever, I just got the message he left sometime last week. nevertheless it is progress.
Post a Comment

Popular posts from this blog

Signs the pain is getting the best of you

100 Symptoms of Fibromyalgia

There was a site that had this and I had linked to it on Tumblr but it is gone. So I had to hunt down someone who found my post and posted the whole thing in a forum. Anyway it is around but I'm posting it here so I will not have to hunt it down to reference it. Now we all know the major symptoms are the wide-spread pain, but our pain isn't just muscle pain... it can be nerve types of pain as well, and the fatigue and the insomnia. And even among symptoms there are some far more frequent than others, but it should be said we have categories... like the cognitive dysfunction, which is a broad one that has more than one symptom and we often just say fibrofog. The insomnia... more than one sleeping disorder. So the list is interesting.

__ Fatigue, made worse by physical exertion or stress
__ Activity level decreased to less than 50% of pre-illness activity level
__ Recurrent flu-like illness
__ Sore throat
__ Hoarseness
__ Tender or swollen lymph nodes (glands), especiall…

When I say I am good

When people ask me how I am feeling 99% of the time I am lying. I often say 'not bad', because I feel it is slightly more honest than 'good' or 'fine'. Got sick of fine. Anyway, I lie for many reasons. 

I'm having a good pain day: They happen and I'll say that I'm good, fine, not bad. I even feel like I can accomplish great things... in moderation. In which case, relatively speaking, for Me I am not actually lying. This is a Good pain day, it is Not Bad for me and I am Fine with it. I just don't want to explain: I just don't want to explain how crappy I feel and in which way I mean. Because I am tired of it. I just want to deal with it, without having to discuss it, mention it or have any sympathy expressed about it. Because it can be complicated. It may be a migraine with specific symptoms. Maybe it is a FM flare though. Or both. And then I have to explain what it is because most people think my migraines are the main issue but I could be FM…