30 things about my illness you might not know meme





For invisible disability awareness please post on your own blog!

1. The illness I live with is: Fibromyalgia and chronic migraines
2. I was diagnosed with it in the year: FMS 1997, migraines 1998
3. But I had symptoms since: I was 8
4. The biggest adjustment I’ve had to make is: changing careers and struggling to hold down full time emloyment
5. Most people assume: If I can work with a migraine sometimes, then I must be fine to work all the time.
6. The hardest part about mornings are: waking up with a full blown migraine and intense grogginess and confusion.
7. My favorite medical TV show is: House
8. A gadget I couldn’t live without is: nothing
9. The hardest part about nights are: horrible insomnia
10. Each day I take 5 pills & vitamins. (No comments, please)
11. Regarding alternative treatments I: have tried chiro, massage therapy, pphysio, herbs, vitamins and likely more that I don't remember
12. If I had to choose between an invisible illness or visible I would choose: visible
13. Regarding working and career: I struggle to just hold down a job, but gave up my career of choice.
14. People would be surprised to know: I am in pain all the time, whether it shows or not.
15. The hardest thing to accept about my new reality has been: the fact my life has become so small, less socializations, unable to visit with family, struggling with work and no energy for anything else... even thought I try and often fail to do so.
16. Something I never thought I could do with my illness that I did was: go on a long trip to scotland.
17. The commercials about my illness: irk me 'don't fear the light' my butt.
18. Something I really miss doing since I was diagnosed is: being able to plan to visit people, can't plan on no pain or less pain.
19. It was really hard to have to give up: my career of choice.
20. A new hobby I have taken up since my diagnosis is: creative writing
21. If I could have one day of feeling normal again I would: go out and socialize and enjoy a night out.
22. My illness has taught me: the complexities of pain, the cost of pain and the way people view invsible disabilties... which makes me want to find a way to help us all.
23. Want to know a secret? One thing people say that gets under my skin is: "but you don't look sick"
24. But I love it when people: show compassion and sympathy.
25. My favorite motto, scripture, quote that gets me through tough times is: don't sweat the small stuff cause its all small stuff.
26. When someone is diagnosed I’d like to tell them: tricks and ways that might help them go through the coping process faster instead of the hard way.
27. Something that has surprised me about living with an illness is: how it changes the way you move in the world, your world view is entirely different.
28. The nicest thing someone did for me when I wasn’t feeling well was: one night on christmas eve I was working, got an acute migraine and became violently ill, my boss helped out and then a former employee offered to come and take my shift so I could leave. He stopped what he was doing and just offered up his time to work a job he has not in years for someone he did not even know.
29. I’m involved with Invisible Illness Week because: Because people do not understand the cost to chronic pain, how it affects all aspects of our lives and those we love.
30. The fact that you read this list makes me feel: engaged and proactive.
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