Skip to main content

Yet another drug to add to the cocktail

My neuro has added another medication to the ever growing list.  So now my preventatives are Lyrica, Verapamil ( A calcium channel blocker), and now Amitriptyline (An antidepressant).  Not that Amitriptyline is new to me... way back in the day it was one of my first non-effective preventatives.  He wants to try it with the others and maybe it will help me sleep some as well.

I have to wonder why some people have chronic migraines rather than occassional ones.  There are more of us out there than one might think.  People are always asking me if doctors know why I get so many migraines.  And how should they or I know?  Not caffiene though, that I can say for sure.  Might be genetics, combined with sleep deprivation, combined with FMS and its photosensativity issues.  Yet, then others with chronic migraines would have other underlying conditions and I am not sure that is the case at all, although it might be in some.  So I do wonder why I am afflicted with so very many migraines such that having a migraine is more normal than not.  Makes me wonder if the whole world is a dang migraine trigger for me.  or like my brain is constantly surging with little mini seizures.  It is strange that a neuro would not have a theory why some people get these chronically.

No matter the cause, if there is one specific cause, the fact remains chronic migraines are difficult to treat.  You try one medication and it is really hard to say if it is doing anything when the migraines are still chronic.  Sometimes I think they are slightly less than usual or slightly less intense, but no dramatic difference at all.  I wonder if there ever will be.  If a med is considered to be effective at a 50% reduction of migraines, then in the end I am still left with chronic migraines.

So we try all these prevenatives and if one seems to have some sort of positive effect we keep it and add to it.  Now I have three.  And I wonder if my brain even remembers what its normal non-drugged up state is.  And I wonder if it would be a good idea to stop all medications, see how things really are and then add them back in slowly to see if there is any real difference.  I do vaguely remember what it was like without a preventative med... it was a lot more throwing up and a lot more sudden blinding auras... so some preventatives seem to help with some of the symptoms of the migraines... just not that pesky pain symptom.  or that could just be the migraine pattern shifting since in replacement of those symptoms I now get a lot more ringing in the ears, hearing loss and permanent visual snow auras, balance problems, virtigo and Alice in Wonderland Syndrome.

So I am still left with wondering why they are chronic and why all these meds that are supposed to work simply do not.  If migraines are caused by excited neural activity then why can't they just dope me up with something that severely dampens that activity?  Sure, I would be dumb as dirt, but there would also be no pain.
2 comments

Popular posts from this blog

Signs the pain is getting the best of you

100 Symptoms of Fibromyalgia

There was a site that had this and I had linked to it on Tumblr but it is gone. So I had to hunt down someone who found my post and posted the whole thing in a forum. Anyway it is around but I'm posting it here so I will not have to hunt it down to reference it. Now we all know the major symptoms are the wide-spread pain, but our pain isn't just muscle pain... it can be nerve types of pain as well, and the fatigue and the insomnia. And even among symptoms there are some far more frequent than others, but it should be said we have categories... like the cognitive dysfunction, which is a broad one that has more than one symptom and we often just say fibrofog. The insomnia... more than one sleeping disorder. So the list is interesting.




GENERAL
__ Fatigue, made worse by physical exertion or stress
__ Activity level decreased to less than 50% of pre-illness activity level
__ Recurrent flu-like illness
__ Sore throat
__ Hoarseness
__ Tender or swollen lymph nodes (glands), especiall…

When I say I am good

When people ask me how I am feeling 99% of the time I am lying. I often say 'not bad', because I feel it is slightly more honest than 'good' or 'fine'. Got sick of fine. Anyway, I lie for many reasons. 



I'm having a good pain day: They happen and I'll say that I'm good, fine, not bad. I even feel like I can accomplish great things... in moderation. In which case, relatively speaking, for Me I am not actually lying. This is a Good pain day, it is Not Bad for me and I am Fine with it. I just don't want to explain: I just don't want to explain how crappy I feel and in which way I mean. Because I am tired of it. I just want to deal with it, without having to discuss it, mention it or have any sympathy expressed about it. Because it can be complicated. It may be a migraine with specific symptoms. Maybe it is a FM flare though. Or both. And then I have to explain what it is because most people think my migraines are the main issue but I could be FM…