Skip to main content


Showing posts from January, 2011

Back to the grind

Monday will be the first day back to full time hours at work.  It is still morbidly funny that a suicide attempt gets you a three month respite but little else.  How much more clear do I need to be to doctors that I need some serious pain relief or a pain management program?  So it is a little surreal to be back to work full time, with my employer expecting me to not miss any work again and my doctors doing nothing more to assist me.  Which has naturally caused me to revert to my former mindset of masking the pain as best as possible, get through the day in whatever way I can and just keep pushing through the pain hoping this time it will not break me.  I seem to be handling the pain well... it is just a case of it is worse being at work, and yes, I have to take more medication to get through the day, and no, I can't exersize while working.  I am just doing the best I can given the circumstances.  I find getting back into the groove of work is a nice distraction, but some days it …

The Fog, the Haze and Daze

I was chatting with a customer last week about Fibromyalgia... not a common topic for me to discuss but it came up because his daughter failed the disability questionnaire  as I always do and so I threw the fact out there.  I know how annoying it is to not get coverage because of a pre-existing disability and in my case it is rather funny because it is the migraines that make me miss work, not the fibro.  He told me a co-worker has FMS and that he had been on strong pain killers for year but was tired to the haze it caused in his thinking and memory so he took some time off to ween off them.  When I thought about it afterwards I had to wonder why they gave that fellow opiates for FMS, as they had also given my father.  I had never been offered any pain control.  Was it because of the field they worked in?  Or because they could communicate how much pain they were in better than I can?  I simply don't know but I don't think those of us with FMS should be put on pain killers.  P…

Space Age Pod Shows Positive Benefits for Relieving Symptoms of Fibromyalgia

The CVAC pod has been used by athletes for years to naturally enhance their stamina and endurance, and now Complete Clinics has been seeing positive benefits in pain relief for its fibromyalgia patients.

At Complete Clinics, those who have used the CVAC report a number of benefits including;

•Improved stamina
•Increased feeling of alertness and mental acuity
•Reduced inflammation, swelling, and pain
•Improved recovery after exertion
•Improved sleep (decreased wake-ups)

"The night after my first CVAC session I was able to sleep a full eight hours and it was the most sound sleep I have had in two years. After continued use, I was astonished to see how active I was becoming. This machine is incredible," said Lori Perez, a Complete Clinics' fibromyalgia patient.

Karen Herbst Ph.D, M.D, board certified in internal medicine and endocrinology and an expert in fat related disorders, believes that fibromyalgia is similar to a rare condition adipose delorosa ("AD") in…

Mindfulness therapy may not be effective for managing fibromyalgia

Mindfulness therapy may not be effective for managing fibromyalgia

In a recent study, fibromyalgia patients using mindfulness-based stress reduction, such as practising yoga, showed no significant improvements in either physical symptoms or emotional well-being.
A program aimed at easing stress with meditation and yoga may not be much help for people with the chronic-pain condition fibromyalgia, a recent study suggests.
The study, published in the journal Pain, looked at the effects of so-called mindfulness-based stress reduction -- a technique developed by researchers at the University of Massachusetts in 1979 that combines mindfulness meditation and gentle yoga
For the new study, researchers led by Dr. Stefan Schmidt, of the University Medical Center in Freiburg, Germany, tested the program's effects among 177 women with fibromyalgia.
They found that women assigned to the mindfulness program showed no greater gains in health-related quality of life than those assigned to a waiting li…

Winter wonderland

This is the amount of snow we have accumulated prior to the last week of additional snow.  We have had temperatures around -24 C to +5 C.  As you all know quick changes in temperature means more pain.  It triggers FMS pain and it triggers migraines.  I really loath winter.  Not only the additional pain from the storms but also the extreme cold which aggravates my asthma and really increases the pain of an existing migraine.  Just walking outside with the wind screaming and the temperatures at that -25 mark makes it feel like someone is repeatedly stabbing me in the brain while at the same time squeezing it in a vice.

Such as it is

I have successfully completed two full weeks of work, possibly a little more given I don't quite remember how long it has been and there were also those two weeks of three days a week only. Quite the accomplishment really. At least I am sure my boss thinks so, but really it is just that after having a break and a mental snap I feel ready to combat once again. At least mentally ready. Emotionally volatile but ready nevertheless. I would like to say these days went smoothly, but come on, honestly they were painful. Some extremely so. But there were some milder days which was nice. One day at a time seems to be working for me, as long as I do not think about the future at all and just aim for the weekend.

There was one day my car got stuck in the snow of our parking lot, which happens a lot. I had a consistently moderately painful migraine all day. It got sharper when I went outside, as it often does in the cruel cold weather. But I was on my way home and just wanted to g…

Here we go again

Turns out the people who handle the short term leave for our workplace totally messed up my graduated return to work. It was supposed to be four weeks ending in five day weeks at six hour days until I am cleared to return to full-time by my neuro. Which means I was underpayed this pay day and that will have to be corrected somehow. The lady did not inform my boss or me of the correction. Not surprising. So I am on six hour days for a bit anyway, which will be nice.

It has been difficult to return to work, although I like keeping busy. The pain is what it is. Not like it can be avoided. It must simply be endured. I have to figure out how to do that again, without the emotional price of it being too high. It is tiring though. The fatal flaw in my exercise plan is that I have no energy after work to do so and even if I did by then my migraine is full throttle. Once again it is work or exercise and not together. Well fine. Be that way, brain. As for working in pain it is sl…

Migraine Auras: Unpleasant or Beautiful? (Migraine #2)

This is a more detailed explination of migraine auras... including the mention of Alice in Wonderland Syndrome! Which is so crazy fun.

Video 1. Visual aura of migraine

Yeah, pretty close to the usually right before migraine visual aura... although sometimes it is all over the visual field.

double jointed wobble wobble

Being hypermobile is cool... you can totally freak people out when you bend your elbows backwards.  So flexibility is not an issue for me.  Sometimes I am so flexible my hip pops right out and I fall.  That is a slight issue.  I have sprained my ankles at least fifty times, but twice I should have broken them but my foot just folded instead.  So there is a Huge klutz factor here.  The important thing for hypermobility is to strengthen the tendons and ligaments so that they hold the joints in place, thus preventing things like your hip popping out or accidentally running into walls all the time like your a ball in a pinball machine.  I was informed of this when I was quite young and managed to to things like gymnastics and figure skating for a few years before that pesky fibromyalgia pain made everything hurt so dang much.  I did try to do some repetitive small weight lifting to strengthen my joints when I was in my early twenties, prior to my official FMS diagnosis, but dang, weight l…