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Fibromyalgia Awareness

I found this on Facebook. One of the many pictures floating around because of FM/ME May 12th Awareness day. I like this one because FM is a syndrome with many symptoms and other conditions, like migraines that can become comorbid with it, that make it a complicated picture for every indivdual. Not fair to compare. For me, migraines have been a Big Issue, which is why this blog has been mainly about my chronic migraines, even though my chronic migraines likely became chronic because I have FM. Or so one theory would be these days, with the whole brain is wired for pain idea. Anyway, because that pain is insane (am I rhyming a lot today or is it me? anyhoo...) the pain related to FM associated with muscles is the lesser evil. Now that I'm in Lyrica anyway. It has in the past been crippling at times, but not all the time and not now. Just episodically and in certain muscle groups (you'll see posts historically where I have mentioned really bad wrist pain, both wrists, or really bad foot pain, both feet, that lasted for about a year, was difficult to treat, made it difficult to fucntion and then the pain went away). That is what it is like... for ME. I got my baseline pain that is low-moderate, unless I do something then it is high-moderate, but bearable. Then there are the flare ups which are severe. Other symptoms can be a wild assortment, we all get our share of them crazy ones. I have been getting eczema, skin rashes, allergy to shampoo out of nowhere, sensativity to smells, chemicals and very, very photophobic even without a migraine. But we are all different. The condition maniefests in different ways. Sleep for example: I get delayed onset insomnia, frequent waking and unrestorative sleep, and sleep peralysis. My father gets sleep apnea. Others my get unresortative sleep and RLS. Most of us get the unresorative sleep pattern, but get other sleep disorters on top of it that makes it extremely diffuclt to get a good nights rest, which them makes their fatigue and pain in the morning more difficult. Nevertheles, don't compare but we can share and support. Because we all need all the support we can get.
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100 Symptoms of Fibromyalgia

There was a site that had this and I had linked to it on Tumblr but it is gone. So I had to hunt down someone who found my post and posted the whole thing in a forum. Anyway it is around but I'm posting it here so I will not have to hunt it down to reference it. Now we all know the major symptoms are the wide-spread pain, but our pain isn't just muscle pain... it can be nerve types of pain as well, and the fatigue and the insomnia. And even among symptoms there are some far more frequent than others, but it should be said we have categories... like the cognitive dysfunction, which is a broad one that has more than one symptom and we often just say fibrofog. The insomnia... more than one sleeping disorder. So the list is interesting.




GENERAL
__ Fatigue, made worse by physical exertion or stress
__ Activity level decreased to less than 50% of pre-illness activity level
__ Recurrent flu-like illness
__ Sore throat
__ Hoarseness
__ Tender or swollen lymph nodes (glands), especiall…

Getting through the high intensity pain flares #Blogboost

The crowded me out of the brain. Making no room for anything else. Distraction was impossible. You feel almost frantic with the pain but must be still.

What do you do? To get through it when you have no distraction?

I ask me this as I am really in the depths of a 9 level frantic level of pain right now. Hoping maybe some writing will be a distraction, but it isn't. As I said, the pain crowds the brain. I have to focus real hard to write and my head isn't clear. Too much pain to focus well. Things become quite difficult to do. 

I will say this: We cannot function. We have to just cope with the pain.

But we are Immersed in the pain, we what do we do?
We can and should rest and get through it the best we can. Here are some of the things I do to get through it.

Relaxation breathing: I can't meditate when in high levels of pain. It just makes me think about how much pain I am in. Just not a good idea. But I do do relaxation breathing. I close my eyes. I focus on my breathing. I even…