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Day 4: Sharing Resources Care page for migraines and fibromyalgia

Create a “care page”
a list of your best resources that someone who is newly diagnosed could
go to when starting to advocate for themselves or a loved one. Remember to include sites that
lead to successful self advocacy! 

Keep in mind on the far right under the column 'Those in pain raise your hand' is a list of fellow migraine or fibromyalgia bloggers you can check out! Also at the the top of the page, or at the bottom of this post, you can go to my Tumblr page and there as well I have followers who have great migraine or FM pages!



Chronic Pain

Invisible Disabilities Association

Pain-Topics.org

Canadian Pain Coalition

Chronic Pain Connection- Healthcentral 

Migraines:

My Migraine Connection- Healthcentral Great place for information and support.

Migraine Research Foundation

Teri Roberts Article List This is a pretty good list of Teri Roberts articles and she is a well known migraine advocate and writer.

Migraine.com An excellent resource of information

American Headache and Migraine Association

mvertigo.org  (Migraine Associated Vertigo Forum)- the forum is great for support but also posts the most recent research on the subject.

Migraine Aura Foundation - What I like about this site is that you can see all the different variations migraine auras can take here however they do not update very often. Nevertheless pretty interesting.

Halo Simulator -Halos are a common migraine aura and this simulator gives an idea what they look like. Another is the Starbursting-simulator

Visual Snow Facebook Group  A great forum for people who experience visual snow, migraine related or not.

Visual Snow Simulator -gives you an idea what someone with VS can see.

thosewithvisualsnow.yuku.com (Visual snow Forum)- I don't have as much experience with this forum. People can post interesting research but sometimes it is very speculative. I like the Facebook group a great deal more but the Yuku forum has been around for some time.


Fibromyalgia:

National Fibromyalgia Association 

National ME/FM Action Network (Canadian) 

Fibromyalgia Network 

FibroAction

FibroTV Podcast Archive 

Fibrotalk

Fibromyalgia Articles- Examiner.com - - Current research related articles about FM as well as helpful information that I come across. I write these articles myself and really where I try to bring the most awareness about the syndrome.

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Making Invisible Disabilities Visible

The Hermit- my tumblr page

Twitter @Nikki_Albert
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