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Showing posts from February, 2013

The fear of suffering is far worse than suffering itself... hmmm

To some extent this is true. Suffering sucks. I know a lot about suffering in the moment. I am suffering from a migraine this very moment that I have had continuously for days. I am suffering in the moment from nasty joint and muscle pain that has been painful enough to make it difficult to move and sleep for the last week. If I dwell on it I can remember decades of migraines and decades of fibromyalgia pain. That is a lot of suffering. What has gotten from the past to the present most of the time is not thinking about it. Sometimes what has gotten me through it has been hope that the pain will be less than it was at that moment. Sometimes what got me through it was the knowledge that eventually life would end and therefore at some point suffering would also end. Mostly, it is not thinking about it. Not thinking about how many years of it in the past, not thinking about how much there is in the present and certainly not thinking about there being no specific end date to …

Preventing chronic pain study... too late if you have it, obviously, but still interesting

“Cortisol, a hormone produced by the adrenal glands, is sometimes called the 'stress hormone' as it is activated in reaction to stress. Our study shows that a small hippocampal volume is associated with higher cortisol levels, which lead to increased vulnerability to pain and could increase the risk of developing pain chronicity,” explained √Čtienne Vachon-Presseau.
As Dr. Pierre Rainville described, “Our research sheds more light on the neurobiological mechanisms of this important relationship between stress and pain. Whether the result of an accident, illness or surgery, pain is often associated with high levels of stress Our findings are useful in that they open up avenues for people who suffer from pain to find treatments that may decrease its impact and perhaps even prevent chronicity. To complement their medical treatment, pain sufferers can also work on their stress management and fear of pain by getting help from a psychologist and trying relaxation or medi…

Depo-Provera so not fun right now

I seriously think I can have unpleasant side effects for every medication I take... but this one being a form of birth control I rather thought there will be just minor ones that I would likely not even notice. Nope. I actually feel rather unwell now. In a way that I know is due to the shot and I'm not going to go into too much detail here lest the men cringe. Point being when my doc said this month would be mild... she was wrong. It is different. I can say that. Messing around with hormones is never a fun thing. I hope next month will 'sort itself out' because if the next two months are like this... then experiment is a big Fail. Not because symptoms wise I'm having a whole lot of not fun... because that is just being a woman, but it is a whole lot of not fun that isn't normal which is a bit of a concern. It is more that it is supposed to help with the hormonally triggered migraines and something about whatever is going on is erratic and causing instead of a const…

Study suggests Fibromyalgia might be an immunologic disorder

Study suggests Fibromyalgia might be an immunologic disorder

This study is actually quite interesting. I have seen quite a bit of studies showing what is going on neurologically which support theories that FM is in some way a dysfunction in the automatic nervous system but the ultimate cause of that whether it be auto-immune or a trauma to the nervous system form an accident or a virus... has just been open to debate. This brings the research back to the immune system dysfunction angle... and they suggest we all have this particular problem and if so, then this can be used diagnostically. Either way, another piece of the puzzle if it can be replicated.

Sun Salutation and touching your toes

On the Wii fit the Sun salutation is broken into pieces which is good because no way in hell I can do 6, 7 and 8 due to my back pain... which is why I had to exclude them from my routine. My routine was already sort of FM gimpy friendly and now it is even more gimpy friendly.... I'm thinking of trying to find some sort of book that is made for people with disabilities for yoga.

Anyway it does have the beginning part here where you bend back (which does hurt my back specifically but I still due it thinking it is gentle enough and maybe helps a little) and then bend forward and touch your toes. Now the whole touching your toes thing with FM has been impossible for me... it is like my muscles in my legs are these taunt elastic bands of pain and when I stretch it is just intense pain and no matter how much I stretch... they never, ever loosen. And I try normal stretches to... stretch the pain out or something and it really just doesn't work. I kept this one on my routine because …

Still waiting on long term application... may be poverty stricken by the time I hear from them

Since there have been delays with paperwork due to my employer and then my doctors office my insurance company just recently got all the proper forms for my long term disability application... let alone looked at them. As you can imagine going from two incomes to one income unexpectedly, when I was already dealing with the decrease in income from short term... has left a rather large gap in the budget. A tight budget I can handle, but no income on my part I cannot... just too many bills to account for. Anyway, sure went into the hole this month. Which would either mean using credit to get out of... which I rather abhor the thought of since I don't know what the foreseeable future looks like and I don't spend what I can't pay. (I have been trying to reduce those due to the fact I know our budget was going to decline and have to some extent succeeded). Or ride it out and hope the forms come through, but our overdraft is right on the limit and when my spouse gets paid we will…

Nerve Stimulation to help prevent migraines

"Wearing a nerve stimulator for 20 minutes a day may be a new option for migraine sufferers, according to new research published in the February 6, 2013, online issue of Neurology®, the medical journal of the American Academy of Neurology. The stimulator is placed on the forehead, and it delivers electrical stimulation to the supraorbital nerve. For the study, 67 people who had an average of four migraine attacks per month were followed for one month with no treatment. Then they received either the stimulation 20 minutes a day for three months or sham stimulation, where they wore the device but the stimulation given was at levels too low to have any effect. Those who received the stimulation had fewer days with migraine in the third month of treatment compared to the first month with no treatment. The number of days with migraine decreased from 6.9 days to 4.8 days per month. The number did not change for those who received the sham treatment. The study also looked at the number…

Migraine with Aura and increased Heart attack risk

We often hear about the increase in stroke risk but not as often the increase in heart attack risk. I have always worried about heart attack risk more than stroke, even though with stroke risk I realize the symptoms would be very hard to tell with migraine with aura unless they felt different to me in some way. However, I have had some surprisingly painful chest pains... either from triptans themselves or sometimes it seems with the migraine itself. Some just worrisome and some scary bad. One time the ER said they were angina and my doctor took my off Imitrex injections... all triptans in fact and put me on toradol pills instead, which then destroyed my digestive system. So that was awesome. My next doctor put me back on triptans, Maxalt and I simply did not protect because triptans work better than anything else, he wasn't willing to put me on painkillers and I could no longer take anti-inflamatories so no real options there. So I simply do not take them more than the three days …

Tracking migraine triggers...

"The study involved 27 people with migraine with aura who reported that bright or flickering light, vigorous exercise, or both, previously triggered an attack. The participants were then exposed to the triggers to see if they caused a headache episode. Participants either went for an intense run or used an exercise bike for one hour, reaching at least 80 percent of their maximum heart rate. Participants also were exposed to bright, flashing or flickering lights for 30 to 40 minutes. After each session, the participants were monitored for about three hours and asked to report any migraine or migraine with aura symptoms. The study found that 11 percent of participants reported a migraine with aura after being exposed to light or exercise. Another 11 percent of participants experienced migraines without aura. No participants developed migraine with aura after light exposure alone.Peter Goadsby, MD, PhD, with the University of California, San Francisco, and a member of the American …

Lumbar spinal stenosis? I have no idea what this is but I figure I don't want it

This is the what my doctor is getting having me x-rayed for. Lumbar spinal stenosis due to she speculates arthritis in the back. I guess this causes a narrowing in the spinal canal over time. Commonly not seen until someone is in their 60's... but, hey, not like that has ever excluded me from chronic pain, eh? I like to jump right on board with that. I don't know if she is right but I totally get how she is getting the idea it might be this because like I mentioned when I said this back pain cropped up, it isn't constant like an injury and these are the symptoms of Lumbar spinal stenosis:

"If the spinal cord or nerves become squeezed, symptoms may include:
Numbness, weakness, cramping, or pain in the legs, feet, or buttocks. These symptoms get worse when you walk, stand straight, or lean backward. The pain gets better when you sit down or lean forward.Stiffness in the legs and thighs.Low back pain.In severe cases, loss of bladder and bowel control."h…