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Showing posts from March, 2014

Migraines and the brain; article from the LA Times

There is evidence that, between attacks, migraine-disordered brains function differently from normal ones. Studies show that migraine-affected brains have a decreased ability to habituate, or get used to a stimulus. If you expose a normal person to a constantly flashing light, then measure the signals evoked in the visual part of his or her brain, the signals will get smaller with time as the brain gets used to the light. But if you expose a person with migraine to a flashing light, the signal will grow larger with time.
"That's why migraineurs will notice small things that will irritate them, like a clock ticking in the background," says Goadsby. "A migraineur gets irritated by things because [he or she] can't get rid of them easily. A person that's not migrainous will just ignore things. The difference is quite stunning." ...
What does trigger migraine attacks in susceptible people is change. It seems that the migraine brain exists in a deli…

the definition of #photophobia

My photophobia is so intense when I take my sunglasses off I have sunglasses on.

Discouraged by pain

I feel momentously discouraged by my chronic pain lately. It might be the amount of fatigue with the pain I feel. Or just the chronic migraines and how they affect my capacity to function and think. Either way I find myself rather discouraged.

I have been off work for more than a year and have made no forward progress. I keep thinking that I can perhaps come to some alternate solution. I even brainstorm some. However, what interferes with this is the momentous fatigue and brain fog and neurological symptoms and the pain. I just don't seem to have the capacity to plan or achieve anything that might even get me in the direction of finding some sort of alternative solution.

I know if the migraines were slightly less than they are it would be workable. But they are not. And have been daily for years.

How to continue like this though in this limbo? It worries me. It is difficult to live on the income provided by my long term leave. Barely workable. I have things I need to fix on the ho…

Did you know? #Migraines are not a headache

Did you know that migraines are not headaches?

You can have a migraine called a silent migraine that does not have the headache phase at all.

The headache phase is but one phase of a typical migraine attack, which can have four phases. The prodrome, the aura, the headache and the postdrome. Migraine without aura doesn't have the aura phase and migraine with aura has the aura phase. (Check out more about the phases here at

Did you know that migraines of more than 15 a month are called Chronic Migraines? Yes it is possible to have migraines more than 15 a month up to daily in fact. However a single acute migraine attack that lasts longer that 72 hours is called a status migraine which is different in the sense that it is potentially more dangerous a state to be in a requires the attention of the ER to break the migraine.

So it is in fact possible to have a migraine every day. It is also possible to go to work with migraines. And do other things we would prefer not to do…

Early to rise, early to #migraine

I got up early today for a bloodwork appointment. And I got a migraine swiftly. I had a decent sleep so I don't think it was a lack of sleep trigger, which it can be from getting up early given I have such sleep issues.

No, I think it was a Light issue. So much light during the morning and peak hours of the day. It really doesn't take long for my brain to say 'Enough' and Bam migraine. I remember this from working because I would get up at the exact time I got up today and migraines would be triggered within a few hours of being at work. Driving in the light then working under florescent lights. I never made it to lunch. And driving home at lunch with a migraine just aggravated it, then driving back to work. Then more florescent lights. I have photophobia all the time as a symptom of fibromyalgia and visual snow. So it is no surprise that photophobia triggers migraines when light is already very painful for me.

Getting up early and staying in the house will still trig…

Frustrating #brainfog day today

Yes, I had a very frustrating bad memory day today. Two appointments canceled as a result.

The first was my lactose and food allergy test I had scheduled online. It is a two hour bloodwork test for the lactose one. The lactose stuff you get from the pharmacy lasts 24hours. I made the appointment online as per the sheet I was given months ago. I should have made the appointment right away... but I had all the other appointments... the MRI, shrink, colonoscopy, barium test all around the same time. So I waited a bit. And then I forgot. So I finally got around to it. Well, I think the chick who initially gave it to me must have told me to call and not do it online, but with my short term memory like I would remember that. The form just had a number to cancel appointments (which I now assume I was supposed to call). I get to my appointment and they say 'We cannot do this we close in an hour.' And I am like I made it on your online site and it specified the time I could make it. Bu…

First day of #Spring? Not around here it isn't

When you are Canadian this is entirely too accurate. We actually had some mildly pleasant weather in the last week. +5 or more celsius (41 fahrenheit) and the snow was melting. 

And then this. The first day of 'Spring'.  Spring is clearly mocking is with this crap. Woke up with some blizzard action. And woke up very early I might add. I had some pain and I could not sleep. I tried. It wasn't happening. I was flaring from This.

Just enough to prevent sleep. So I was up very early. It meant I had about three hours of sleep. I knew this meant I would get a Massive migraine today. So I thought while I was up I might as well make us of the time I had before that lack of sleep migraine hit to do some housekeeping action.

I did some laundry.I organized my sock drawer (it needed to be done. Like 800 socks in there without pairs. I needed to weed them out. Pair up the pairs and toss the rest. It has been on my to-do list for Months).Thoroughly cleaned the entire kitchen counter t…

My new app to help keep me organized

I have so many things i need to get done that I keep forgetting to do. And recently I forgot entirely to go to my shrink appointment.

And this is how I end up feeling. Frantic laughter with all these reminders, in different places, that are not even working to remind me I might add.

And I need reminders. With this brain fog I forget these things with surprising ease. Forget what day it is. Forget what day of the week it is. Forget when that appointment is for. Forget that I have a list of things to do until it is too late to do any of them. Might remember I have one to do but not the several I actually have to do.

I have tried more than one planner on my iPhone but I need easy to use. Easy to input. So that I will use it at that moment I need to ... lest I forget to input it later, which happens. Often. So real easy to input is ideal. Some are not. They are awesome with a lot of features and complexity but easy to input,... not in the least. So I wait till I have a moment to get it in…

Pfizer's Dr. Freda Lewis-Hall Discusses Fibromyalgia -- Dr. Phil

Fibromyalgia is very much a rollercoaster ride that you cannot get off of. You are very tempted on the days you feel less pain to get a whole lot done, which will cause you even more pain the next day, if not more than that. So resisting that temptation is a good thing. Saves some of that rollercoaster ride of pain if we stay within our limitations and moderate our activities all the time. Although then we never feel like we are ever accomplishing anything. For example, I can never ever just clean the house. That is an impossible feat. On a good pain day I can do the tasks that are more difficult like vacuuming or cleaning the bathtub and on real bad days I can just tidy up a bit and call it a day. But you always have to segment your activities and so you never feel like anything is really ever getting done. However, my spouse does help with some things... like he does all the shopping. So that is a massive help to me. That has always been a task that I have found to be quite draini…

Quality of life scale

NewLife Outlook Site  Has this image on it which I found interesting. So where is your Quality of Life? Mine is a 2 or a 3 depending on the day. Shocked me how low it was. But it really should not have given I am hermit that rarely leaves the house.

Msssive fibro flare time

I have a cold. I just got over a cold not that long ago, but there you go. And I take lots of vitamin C and E. But I have a crappy immune system. I get sick less often from not working given I seemed to catch everything people had in the office or a customer brought on by and now I just catch what my spouse brings on home or something from a doctors office.

Sinus colds are not at all pleasant when you have chronic migraines. Aside from the burning throat, cough, sinus congestion and fever you have this horrific off the charts headache that is both a migraine and a sinus headache merged into this massive beast of pain. Therefore coughing is a huge mistake. It is agony to cough... the pain just ricochets through your brain. Or you can lightly cough and it just feels like being smashed in the forehead.

So that is not pleasant in the least.

What is entirely uncalled for is that this seems to have triggers just a massive fibro flare. FM can be aggravated by being ill for sure. Always is. …

I have been getting quite the workout the last couple of days.

I have been getting quite the workout the last couple of days. I'm moving my library downstairs to an empty room we have. My brother used to live here and that was his room but now that he doesn't we figure it will make a fine library. Also opens up the office space. So all four large bookshelves of fiction are going down there. Non-fiction stays upstairs. And it has been a real hassle to move all these books. My spouse moved the bookshelves by himself and some boxes of books I loaded up. However I began before we had the boxes by loading up a new bookshelf he built down there by trucking books down by the armful. And as I began to organize it I have been doing that since then so there have been less boxes to load up.


This is how I feel about now. Up and down. Up and down. By today feel like stairs are not my friend and getting nowhere fast. The first day my legs were killing me from just the extra effort. Now they are just that weak feeling I get when I go up too many stai…