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Let's talk fantasy. #ChronicPain


There is thinking positive and there is completely unrealistic. Thinking positive is trying things to manage the pain and maybe lowering it in some way. Completely unrealistic is thinking the pain will end. Chronic pain really doesn't have an end date and I have understood that aspect from the very beginning. I think you try and fool yourself into thinking it won't every interfere with major aspects of your life but eventually you realize pain can be very difficult to handle. And you can always get more than one chronic pain condition.

Other people sometimes believe when we try a new treatment it will miraculously cure all our ails and I have no idea where they get this impression from. Perhaps they still have this innocent impression that modern medicine can do miracles. It can't. The pills we take are rather unremarkable. They have a ton of side effects worth mentioning but the actual effects we take them for are nothing to write home about. However, I remember back in the day when my migraines became more frequent I was of this opinion. I never thought this for fibromyalgia. It is a complicated condition that doctors simply don't get. It boggles their mind and they don't know how to treat it and many of them simply don't bother to try. When I began to get migraines they began at a steady frequent monthly rate of the get go but I managed them with triptans fairly well. It should be no surprise with completely untreated fibromyalgia, that heightens pain and has completely unmanaged chronic insomnia, a well known migraine trigger... that they became more frequent at a steady pace. Especially as life went on and I could not manage my sleep cycle due to having more rigid life obligations. Have to get up and go whether I have little sleep or not. And the migraines got more frequent. I made this assumption that doctors would be able to help manage them because they are migraines. Migraines are very well known. There are many treatment options. Doctors sound very confident and willing to treat them. I assumed they would help me get back to that same level of frequency that could be handled well by triptans. Instead a steady pace into chronic migraines. And then more. And then more. Until you can't get more than daily. So I am quite aware of the limits of their knowledge and the limits of medications.

It sure would be nice to get back to episodic migraines though. I mean that sounds so wonderful. You have no idea how awesome that would be. While I would still have daily pain with the fibro and the episodic migraines I would have a much more manageable level of pain. I wonder if that is even a fantasy at this point even though i know it is conceivable. Anyway the point is to achieve some lowering of pain intensity or frequency. That is reality. That is the desire. That increases the quality of life just a tad more.

And chronic pain treatment should not be a fantasy though. We should have access to everything that could potentially help manage the pain. And not decades later either.
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The crowded me out of the brain. Making no room for anything else. Distraction was impossible. You feel almost frantic with the pain but must be still.

What do you do? To get through it when you have no distraction?

I ask me this as I am really in the depths of a 9 level frantic level of pain right now. Hoping maybe some writing will be a distraction, but it isn't. As I said, the pain crowds the brain. I have to focus real hard to write and my head isn't clear. Too much pain to focus well. Things become quite difficult to do. 

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But we are Immersed in the pain, we what do we do?
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