Skip to main content

#MHAM #MHAMBC #MIgraine Day24 Hold On

Day 24 of migraine awareness month “Hold On” video Wilson Phillips:
Watch the Wilson Phillips video below, then write on: When it seems Migraine has dragged us down into the pits of despair, changing our lives until we barely recognize ourselves, what do you do to hold on and keep fighting for your dream of better health?



This song can be easily related to the battle of chronic pain. To the struggle to hold on. And also to the struggle to adapt and change.We are in pain and that is a fact. But we have to hold on. For another day. Another week. Another year. We have no idea when things will improve for the better or how they will improve for the better, so we just have to hold on and fight until then. A damn long and hard battle it is too.

We can get lost in the pain. In the survival mode of just getting through the pain day by day. Depression can be an added burden as well. And honestly I have no idea what I do during those times to hold on when it just seems insane to do so. Just the will to do so it seems. Or the time distorting factor of pain such that you forget how long you have been stuck like that. Or the common sense to refuse to think about the future and how it may resemble the present too closely for comfort. I just live my life of inches. Getting through the pain moments. Trying to get enough sleep.

Because I am an introvert I always during these times, and just for general coping as well, try to find some alone time in there. Getting some time for myself to rejuvenate and recuperate always helps me in the long run. During this time I do things just for myself. Like writing or reading and just try to get my center back.

I always tell myself that no matter how brutal the pain is at that time, no matter how much I think I cannot endure, that it will pass. And it will get better. And I will have days I can cope better. I know this from past experience. I know it more than the lie that the pain tells me; that it will never go away and will consume my future. So I just need to hold on until then.

One of the largest lessons I have learned from chronic migraines is that 'holding on' is not 'pushing through the pain until I see a neuro and hopefully this time he comes up with something that does something'. Pushing through the pain on a constant basis and living in that survival mode means dealing with excessive amounts of pain and suicidal ideation as a result. I have learned that I need to change the circumstances surrounding that in order to cope more effectively. No, 'holding on' is fundamentally understanding that I cannot be strong every day and some days I will have a harder time coping than other days with the pain, some weeks will be worse than others, and that I just need to understand all things change and it will pass. I will be strong again. I will cope again. We cannot be strong every minute of every day. We all have days where the pain gets to us and that is fine. When I am in a great deal of pain I like to think 'This too shall pass' because while chronic migraines may endure, each migraine ends, so it will end. Just like when I have trouble coping with the pain, that too will pass.

Twitter: nikki_Albert
 Facebook: www.facebook.com/BrainlessBlogger
 blog: http://brainlessblogger.blogspot.ca
 Tumblr: http://hermitbrainlessblogger.tumblr.com


Day #1 post “What would you do if your dream of a totally pain- and symptom-free life, came true?”
Day #2 post "Bed of Clouds poem to ponder"
Day #3 post "Recurrent dreams"
Day #4 post  "Still I Rise"
Day #5 post "Monsters"
Day #6 post "Ways to raise awareness."
Day #7 post "What I do for Awareness"
Day #8 post "Do not forget to live"
Day #9 post "What fear can teach us."
Day #10 post  "Twilight is the best light."
Day #11 post "dream a little dream"
Day #12 post "Who moved my cheese"
Day #13 post "Faces of Migraine"
Day 14 post "Mulan"
Day #15 post "only human"
Day #16 post "perspective is everything."
Day #17 post "imagine a treatment"
Day #18 post "I dreamed a dream video"
Day #19 post "IF poem"
Day #20 post "Daydreaming"
Day #21 post "Body language"
Day #22 post "support system"
Day #23 post "John Lennon quote"

Post a Comment

Popular posts from this blog

Signs the pain is getting the best of you

100 Symptoms of Fibromyalgia

There was a site that had this and I had linked to it on Tumblr but it is gone. So I had to hunt down someone who found my post and posted the whole thing in a forum. Anyway it is around but I'm posting it here so I will not have to hunt it down to reference it. Now we all know the major symptoms are the wide-spread pain, but our pain isn't just muscle pain... it can be nerve types of pain as well, and the fatigue and the insomnia. And even among symptoms there are some far more frequent than others, but it should be said we have categories... like the cognitive dysfunction, which is a broad one that has more than one symptom and we often just say fibrofog. The insomnia... more than one sleeping disorder. So the list is interesting.




GENERAL
__ Fatigue, made worse by physical exertion or stress
__ Activity level decreased to less than 50% of pre-illness activity level
__ Recurrent flu-like illness
__ Sore throat
__ Hoarseness
__ Tender or swollen lymph nodes (glands), especiall…

When I say I am good

When people ask me how I am feeling 99% of the time I am lying. I often say 'not bad', because I feel it is slightly more honest than 'good' or 'fine'. Got sick of fine. Anyway, I lie for many reasons. 



I'm having a good pain day: They happen and I'll say that I'm good, fine, not bad. I even feel like I can accomplish great things... in moderation. In which case, relatively speaking, for Me I am not actually lying. This is a Good pain day, it is Not Bad for me and I am Fine with it. I just don't want to explain: I just don't want to explain how crappy I feel and in which way I mean. Because I am tired of it. I just want to deal with it, without having to discuss it, mention it or have any sympathy expressed about it. Because it can be complicated. It may be a migraine with specific symptoms. Maybe it is a FM flare though. Or both. And then I have to explain what it is because most people think my migraines are the main issue but I could be FM…