Skip to main content

#MHAM #MHAMBC Reflecting

Alternate topic for today post 14: “Reflection” video Mulan



Partly we are aware this segment from the movie is about perception. About labels. How we may feel we do not match up to the labels imposed on us, whatever those labels are imposed on us. Mother, child, sibling, co-worker, worker, housewife, spouse, citizen. Whatever they are we may feel that we may not meet the standards others have of us due to our illness. There may be a lot of stigma we face as a result. A lot of misunderstanding. A lot of conflict that we try to resolve but cannot be resolved due to the lack of insight others have about our invisible disability.

Conversely we can also have other labels applied to us like 'disabled' that have a lot of stigma when it comes to other people.

Another facet to this is the fact that we ourselves have expectations. We believe the very same things about all those labels. So we have expectations of ourselves that exceed our capacity. And when we fail to meet those expectations in Any way we inflict upon ourselves a vast amount of guilt. In this way we fail to see who we Really are. Instead we see this illusion of who we feel we Must be, but cannot be and maybe never could have been. Certainly cannot be. And forcing ourselves to try and fit our own ideals just makes things worse on ourselves. We need to give ourselves a major break. We get enough stigma from others without internal stigma. Which essentially is what that comes from. When we have unrealistic expectations of ourselves or preconceived notions of what we should be or negative notions of what we are if we are forced to becomes disabled, then we are basically inflicted internal stigma on ourselves.

Also though their is always a sense that we with chronic illness have an innate sense of dualism because of how we feel inside and how we can actually be. I may look young, look healthy or as the saying goes 'but you don't look sick'... yet I am. I feel quite a bit older than I physically look. I cannot do all the things I may think I can. I certainly cannot do all the things someone my age can. I have do do things with all do care and attention, with preparation, with moderation and with limitations. But I have no appearance of being disabled.Never quite matching our inward feeling and perception of self. Their is the pained self. The physical self. And the person we intrinsically feel that we are. None of those may match up well all the time.

Twitter: nikki_Albert
 Facebook: www.facebook.com/BrainlessBlogger
 blog: http://brainlessblogger.blogspot.ca
 Tumblr: http://hermitbrainlessblogger.tumblr.com


Day #1 post “What would you do if your dream of a totally pain- and symptom-free life, came true?”
Day #2 post "Bed of Clouds poem to ponder"
Day #3 post "Recurrent dreams"
Day #4 post  "Still I Rise"
Day #5 post "Monsters"
Day #6 post "Ways to raise awareness."
Day #7 post "What I do for Awareness"
Day #8 post "Do not forget to live"
Day #9 post "What fear can teach us."
Day #10 post  "Twilight is the best light."
Day #11 post "dream a little dream"
Day #12 post "Who moved my cheese"
Day #13 post "Faces of Migraine"



Post a Comment

Popular posts from this blog

Signs the pain is getting the best of you

100 Symptoms of Fibromyalgia

There was a site that had this and I had linked to it on Tumblr but it is gone. So I had to hunt down someone who found my post and posted the whole thing in a forum. Anyway it is around but I'm posting it here so I will not have to hunt it down to reference it. Now we all know the major symptoms are the wide-spread pain, but our pain isn't just muscle pain... it can be nerve types of pain as well, and the fatigue and the insomnia. And even among symptoms there are some far more frequent than others, but it should be said we have categories... like the cognitive dysfunction, which is a broad one that has more than one symptom and we often just say fibrofog. The insomnia... more than one sleeping disorder. So the list is interesting.




GENERAL
__ Fatigue, made worse by physical exertion or stress
__ Activity level decreased to less than 50% of pre-illness activity level
__ Recurrent flu-like illness
__ Sore throat
__ Hoarseness
__ Tender or swollen lymph nodes (glands), especiall…

Getting through the high intensity pain flares #Blogboost

The crowded me out of the brain. Making no room for anything else. Distraction was impossible. You feel almost frantic with the pain but must be still.

What do you do? To get through it when you have no distraction?

I ask me this as I am really in the depths of a 9 level frantic level of pain right now. Hoping maybe some writing will be a distraction, but it isn't. As I said, the pain crowds the brain. I have to focus real hard to write and my head isn't clear. Too much pain to focus well. Things become quite difficult to do. 

I will say this: We cannot function. We have to just cope with the pain.

But we are Immersed in the pain, we what do we do?
We can and should rest and get through it the best we can. Here are some of the things I do to get through it.

Relaxation breathing: I can't meditate when in high levels of pain. It just makes me think about how much pain I am in. Just not a good idea. But I do do relaxation breathing. I close my eyes. I focus on my breathing. I even…