Skip to main content

Epic #pain day

What do you do for those Epic pain days? Those days that exceed your pain tolerance? How do you cope with that exceptional level of pain that defies all reason?

I generally call these 'lost days' because they are lost to all productive activities and all other activities as well. They are just lost to pain. We can do nothing but manage our pain as best we can and ride it out.

Yet it is not as easy as all that. The pain is intense and digs right into your very soul. It is at these times I am at the highest risk of depressive thoughts. Of even suicidal ideation. The pain just circles around the brain as it does and you lose your sense of past and future. Locked into this moment that seems stretched on to eternity. And you believe there is just no end to the pain. In general. To this pain, yes, eventually, to all pain... no, never. And that haunts you during these most intense moments. So I must find ways to distract my thoughts at all costs because this being consumed by the pain is a very bad state for me to be in. Either distraction of some sort, that I am capable of. Or sleep, if I am in fact capable of that. Those are often my only solutions.

How to distract your brain in intense moments of pain varies from person to person. What one person can do another just cannot. And other times what you can do during one episode becomes impossible during another. For example, often I like to read to distract myself. Even when I cannot handle doing on the internet or watching TV I can read. Even with poor vision in dim light, I can read. Prefer dim light to be honest. But a lot of people have problems with this. Some people prefer watching a movie for example, but often the light and sound aggravates me. So we have to pick and choose what we can when we can.

Sleep is often tricky at the best of times with pain. However when pain is very high sometimes sleep is literally the best solution. So if you can attain it I often aim for it.

I also like anything that soothes. I like menthol creams on my neck. I have a migraine balm I use on my temples, forehead, cheek and jaw. I like ice on the back of my head. It usually hurts more to lay down completely but resting upright against something works quite well for me. Some people like to take baths. I cannot due to blood pressure drops, but I would if I could. And we can do things like mindful meditation or relaxation breathing or listening to really soft mellow music. Absolutely none of this will stop the pain, it just helps with the mindset while in pain. Anything to keep distress down is what I aim for. Being calm and relaxed and in pain sort of seems like a contradiction, but I aim to be as calm as possible, and as relaxed as possible. Keep my mind off stressful thoughts. And away from its depressive negative spiral.

Some days... it all seems to work better than others. But no one likes lost days. They are lost no matter what you do to manage the pain and that is exceptionally frustrating. Yet we do have to take care of ourselves during these times of increased pain so that it does not, well, continue.
Post a Comment

Popular posts from this blog

Signs the pain is getting the best of you

100 Symptoms of Fibromyalgia

There was a site that had this and I had linked to it on Tumblr but it is gone. So I had to hunt down someone who found my post and posted the whole thing in a forum. Anyway it is around but I'm posting it here so I will not have to hunt it down to reference it. Now we all know the major symptoms are the wide-spread pain, but our pain isn't just muscle pain... it can be nerve types of pain as well, and the fatigue and the insomnia. And even among symptoms there are some far more frequent than others, but it should be said we have categories... like the cognitive dysfunction, which is a broad one that has more than one symptom and we often just say fibrofog. The insomnia... more than one sleeping disorder. So the list is interesting.

__ Fatigue, made worse by physical exertion or stress
__ Activity level decreased to less than 50% of pre-illness activity level
__ Recurrent flu-like illness
__ Sore throat
__ Hoarseness
__ Tender or swollen lymph nodes (glands), especiall…

When I say I am good

When people ask me how I am feeling 99% of the time I am lying. I often say 'not bad', because I feel it is slightly more honest than 'good' or 'fine'. Got sick of fine. Anyway, I lie for many reasons. 

I'm having a good pain day: They happen and I'll say that I'm good, fine, not bad. I even feel like I can accomplish great things... in moderation. In which case, relatively speaking, for Me I am not actually lying. This is a Good pain day, it is Not Bad for me and I am Fine with it. I just don't want to explain: I just don't want to explain how crappy I feel and in which way I mean. Because I am tired of it. I just want to deal with it, without having to discuss it, mention it or have any sympathy expressed about it. Because it can be complicated. It may be a migraine with specific symptoms. Maybe it is a FM flare though. Or both. And then I have to explain what it is because most people think my migraines are the main issue but I could be FM…