Skip to main content

Thinking a little on #Lifestyle #changes


One should never compare yourself to how others are doing when it comes to chronic illness. That being said there are some people that I really admire for the things they have accomplished. I read some comments about some people who are doing phenomenal with exercise programs. Others doing well with massive changes to their diets. Others who have quit smoking, are exercising and doing changes to their diet all in one massive go.

I love these stories. I like to think they say 'suck it chronic illness!'

I also like them because they are inspirational for those of us struggling to make lifestyle changes. It suggests to us that a) it is possible and b) we might in fact get a positive result from it.

Lifestyle changes are very difficult because we do not see a result right away. Often we see the opposite right away. Things get worse before they get better. Not exactly encouraging. Also it takes a lot of willpower. And not in the ordinary sense of the word either. It takes chronic illness willpower. We are tired. We are fatigued. We have little energy and willpower is something we use to get up in the morning. To do necessary tasks in the day. To to these extra tasks is difficult. Very difficult.

They are worth attempting. I always suggest starting slow with baby steps. Never compare yourselves to the pace of others. Like for exercise, find your minimum baseline and then you slowly increase from there based on your comfort level. And everyone will proceed from there differently. As I know, since it is slow going for me. Same thing for mediation. No one is going to hit that zen zone out of the gate. It is recommended you do five to ten minutes a day and slowly you just get better and better at it.

We all understand the need to break bad habits and make new habits that will be beneficial to us. However it is a process. We don't even know what combo of things we do will even have any effect and so that is difficult on us sometimes. We do all these things with potentially no return. I like to think of it like this; we do all these things and there is a potential for return, like each one might do a slight bit such that it builds up to some sort of impact. And some sort of impact is better than no impact. Even if that impact is just increasing my capacity to cope with pain.

So to those who have achieved these goals and have had a positive impact on it, this is awesome to hear. We need to hear these positive stories to give us a boost once in a while. To hear that exercise is possible and had a positive impact instead of flat out impossible and had no impact. It is good to hear about the positives and the possibilities. We simply do not hear it enough I think.
Post a Comment

Popular posts from this blog

Signs the pain is getting the best of you

100 Symptoms of Fibromyalgia

There was a site that had this and I had linked to it on Tumblr but it is gone. So I had to hunt down someone who found my post and posted the whole thing in a forum. Anyway it is around but I'm posting it here so I will not have to hunt it down to reference it. Now we all know the major symptoms are the wide-spread pain, but our pain isn't just muscle pain... it can be nerve types of pain as well, and the fatigue and the insomnia. And even among symptoms there are some far more frequent than others, but it should be said we have categories... like the cognitive dysfunction, which is a broad one that has more than one symptom and we often just say fibrofog. The insomnia... more than one sleeping disorder. So the list is interesting.




GENERAL
__ Fatigue, made worse by physical exertion or stress
__ Activity level decreased to less than 50% of pre-illness activity level
__ Recurrent flu-like illness
__ Sore throat
__ Hoarseness
__ Tender or swollen lymph nodes (glands), especiall…

When I say I am good

When people ask me how I am feeling 99% of the time I am lying. I often say 'not bad', because I feel it is slightly more honest than 'good' or 'fine'. Got sick of fine. Anyway, I lie for many reasons. 



I'm having a good pain day: They happen and I'll say that I'm good, fine, not bad. I even feel like I can accomplish great things... in moderation. In which case, relatively speaking, for Me I am not actually lying. This is a Good pain day, it is Not Bad for me and I am Fine with it. I just don't want to explain: I just don't want to explain how crappy I feel and in which way I mean. Because I am tired of it. I just want to deal with it, without having to discuss it, mention it or have any sympathy expressed about it. Because it can be complicated. It may be a migraine with specific symptoms. Maybe it is a FM flare though. Or both. And then I have to explain what it is because most people think my migraines are the main issue but I could be FM…