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Day 18 #MHAM #MHAMBC Doc and Hope? Or Hopeless

Hope from Our Doctors: Share what your doctor has said to you that give you hope.
 


Here is the thing about doctors... they are the dark mountain of disappointments in this image I have shared. A very long time ago when I was younger than I am now and I didn't know a lot about my illnesses. I trust doctors to help me and I believed them when they said they could. And now I don't believe there is a high chance of success medications will help me, and then there are side effects, and even if it does slightly help it might not even last that long before it stops working. And it Never works as well as they claim that it will. And they never have as much knowledge about my illness as I do. When they 'run out of ideas' it is like a joke because I have many more ideas they have not tried.

So it is difficult to carve a tunnel of hope through that massive mountain of disappointments. Over and over again medications do not work. Treatments do not work. Then finally they are all like 'I don't know. I ran out of ideas. I'm going to have to send you to another neuro'. And when you have a hope they will help you and you are so very desperate for relief and you have been waiting a freaking year to see them (yeah Canadian here)... and they say 'yeah ran out of ideas no idea what to do anymore.' it is devastating and sucks all the hope right out of you.

So, yeah, they have back in the day said things that gave me hope but there was no follow through with that. And other times they said flat out they would have trouble treating the persistent migraine auras and migraine associated vertigo so at least I expected the failure.

The only thing that helped me in the least with hope was when I went to the pain clinic and they had this class called Pain 101. Basically this learn how to deal with the pain you have. Don't let the pain stop you from trying and from living. Learn how to manage the suffering. And that made me believe I might have some small amount of control over my suffering and some hope in my capacity to cope.


"The Migraine and Headache Awareness Month Blog Challenge is organized by the American Headache and Migraine Association."

Prompts to be found on: Awareness Month page.




Awareness Month page.

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