Skip to main content

Pain clinic appointment

I went to the pain clinic today hoping they would address some issues for me. However, they could not address the vertigo issue I am having with the migraines. They said I need to go back to neuro for that. And that can take up to a year to get into. I will try calling them directly to see if I can get in sooner, otherwise I have to go through a referral and on a waiting list.

He said he is not comfortable with me driving with the vertigo. So that now makes two medical professions who have said that. And nothing I can do about it since I need a way to get to work. He said to not drive with it, so that would be every day... so that does not help at all. I will have to wait for the neuro to adjust my medication.

He increased my pain medication to help with the pain at night, which is good, maybe I will get some sleep now.

And he said in regards to work I should consider asking my employer to go part time. As I do not want to push myself and push myself and burn out and end up on leave again. And he is right. I am just pushing though the pain trying to make it work. Knowing it won't because it is stressful, increases the pain and increases the lack of sleep from the increase in pain. You end up in a viscous cycle of high pain, no sleep, higher pain, less sleep.

It should be noted I agree with him on that but I had asked this company to accommodate me in that way before. They said no. They said my job was face-to-face full-time with the specified hours and that they didn't consider my disability to be a disability. Made me want them to watch their own disability awareness film to be honest because it talks about not all disabilities are visible. Ha. Point is I tried all that when I was in a real bad place, and they gave me the big F U. So I don't know if this company, despite what they Say, really does well with disabled people or if it was just that branch that didn't. Hard to say. They had said they talked to the area manager and HR, which makes it sound like everyone denied me. Like it was really the whole company decision on their part. So while I agree with the pain doctor, who hadn't wanted me to return to full time work in the first place, that part time work might be all I am truly capable of now... I question whether the company I work for would give a damn about it.


Post a Comment

Popular posts from this blog

Signs the pain is getting the best of you

100 Symptoms of Fibromyalgia

There was a site that had this and I had linked to it on Tumblr but it is gone. So I had to hunt down someone who found my post and posted the whole thing in a forum. Anyway it is around but I'm posting it here so I will not have to hunt it down to reference it. Now we all know the major symptoms are the wide-spread pain, but our pain isn't just muscle pain... it can be nerve types of pain as well, and the fatigue and the insomnia. And even among symptoms there are some far more frequent than others, but it should be said we have categories... like the cognitive dysfunction, which is a broad one that has more than one symptom and we often just say fibrofog. The insomnia... more than one sleeping disorder. So the list is interesting.




GENERAL
__ Fatigue, made worse by physical exertion or stress
__ Activity level decreased to less than 50% of pre-illness activity level
__ Recurrent flu-like illness
__ Sore throat
__ Hoarseness
__ Tender or swollen lymph nodes (glands), especiall…

When I say I am good

When people ask me how I am feeling 99% of the time I am lying. I often say 'not bad', because I feel it is slightly more honest than 'good' or 'fine'. Got sick of fine. Anyway, I lie for many reasons. 



I'm having a good pain day: They happen and I'll say that I'm good, fine, not bad. I even feel like I can accomplish great things... in moderation. In which case, relatively speaking, for Me I am not actually lying. This is a Good pain day, it is Not Bad for me and I am Fine with it. I just don't want to explain: I just don't want to explain how crappy I feel and in which way I mean. Because I am tired of it. I just want to deal with it, without having to discuss it, mention it or have any sympathy expressed about it. Because it can be complicated. It may be a migraine with specific symptoms. Maybe it is a FM flare though. Or both. And then I have to explain what it is because most people think my migraines are the main issue but I could be FM…