Skip to main content

#Surviving #Pain in a #Day or more


I sometimes refer to Chronic Pain as a life by inches. Often we do not focus on the future. We focus on This Moment, then This Moment and then This Moment. A life by inches.

Sometimes when I am at work and I am in acute pain I exist in pain. My brain is filled to the brim with pain. So I need to focus very hard on anything else. I focus directly what is before me. I am careful. I am meticulous. I check my work. I am slow. I just methodically plod along taking one task at a time. Not thinking about the next task or the previous one. Not thinking about how much of the day I must get through... because it is too long, too much... I just need to focus on the now. I can handle the now of the pain. Not 8 hours of it.

And fine, I get through the day.

But damned if you can exist your whole life like this. A life of inches. Survival mode. Just get through this moment and I'll be fine. And then this moment. With no past, no future, no goals, no ambitions. Just surviving the Now of existence.

It is fine to get through a day like that when it is necessary and it is indeed necessary once you get above an 8 in pain. But once we exist in survival mode it is a horrible place to exist in. It means we have no effective pain management and something needs to be done about it. It means we are way past the point of a warning that things are not well with your pain management... this is not working. And no one can exist in survival mode for long. We are at high risk for depression when our existence is like that. Our pain often will exceed our coping strategies. It should be the alarm within us that tells us we need help. We need a doctor to help us with our pain management and if our doctor will not, then a referral to a pain clinic or neuro who will and if they are not, then a new one.
Post a Comment

Popular posts from this blog

Signs the pain is getting the best of you

100 Symptoms of Fibromyalgia

There was a site that had this and I had linked to it on Tumblr but it is gone. So I had to hunt down someone who found my post and posted the whole thing in a forum. Anyway it is around but I'm posting it here so I will not have to hunt it down to reference it. Now we all know the major symptoms are the wide-spread pain, but our pain isn't just muscle pain... it can be nerve types of pain as well, and the fatigue and the insomnia. And even among symptoms there are some far more frequent than others, but it should be said we have categories... like the cognitive dysfunction, which is a broad one that has more than one symptom and we often just say fibrofog. The insomnia... more than one sleeping disorder. So the list is interesting.




GENERAL
__ Fatigue, made worse by physical exertion or stress
__ Activity level decreased to less than 50% of pre-illness activity level
__ Recurrent flu-like illness
__ Sore throat
__ Hoarseness
__ Tender or swollen lymph nodes (glands), especiall…

When I say I am good

When people ask me how I am feeling 99% of the time I am lying. I often say 'not bad', because I feel it is slightly more honest than 'good' or 'fine'. Got sick of fine. Anyway, I lie for many reasons. 



I'm having a good pain day: They happen and I'll say that I'm good, fine, not bad. I even feel like I can accomplish great things... in moderation. In which case, relatively speaking, for Me I am not actually lying. This is a Good pain day, it is Not Bad for me and I am Fine with it. I just don't want to explain: I just don't want to explain how crappy I feel and in which way I mean. Because I am tired of it. I just want to deal with it, without having to discuss it, mention it or have any sympathy expressed about it. Because it can be complicated. It may be a migraine with specific symptoms. Maybe it is a FM flare though. Or both. And then I have to explain what it is because most people think my migraines are the main issue but I could be FM…