Skip to main content

Posts

Showing posts from November, 2015

Punishing the #pain patient

“We propose that pain intensity is not the best measure of the success of chronic-pain treatment. When pain is chronic, its intensity isn’t a simple measure of something that can be easily fixed. Suffering may be related as much to the meaning of pain as to its intensity,” they wrote.“Patients who report the greatest intensity of chronic pain are often overwhelmed, are burdened by coexisting substance use or other mental health conditions,” they added.Instead of opioids, the doctors say that an interdisciplinary and multimodal treatment coupled with coping and acceptance strategies are critical.  In addition, they conclude that a “willingness to accept pain and engagement in life activities despite pain, may reduce suffering and disability without necessarily reducing pain intensity.”hNational Pain Report

In essence what they are saying in the article is that they are trying to find new ways without opiates to treat chronic pain. And one is well teach them to deal with a pai…

Drop that damn guilt

I was thinking today about work. How this leave is longer than I intended and how I feel very guilty about this. How I went on leave at all and let down my boss who is a great boss. How I wish I was well and this wasn't an issue.

Then I stopped myself and said. No. It is not my Fault I am ill. Not my fault. Not my fault.
And I have to do the things to improve and maintain that health. Ensure it does not get worse. Sometimes these things are necessary and this one was necessary, due to my mental health at the time. I know improvements need to be made. And I should not feel guilty about this necessity.

We have a right to care for health. We should without the guilt of it plaguing us. Situations do not always make us comfortable, but we shouldn't be caring for everyone but ourselves, should we? No we should have our own well-being in mind. When we do it makes it easier to then do the things we can do Within our limits. Taking care of ourselves actually makes easier to handle thi…

Think positive... wellll

Why You Shouldn't Tell Someone With Depression to Adopt a 'Positive Outlook' 

When you tell someone with depression that they should try having a "positive outlook", you might think that you are being helpful or that you are providing genuine advice, perhaps on the basis of your own experiences. But what needs to be understood is that, for most depression sufferers, it is simply not the case that it hasn't occurred to them not to be in a state of intense and asphyxiating sadness that engulfs them entirely. Rather, it's that having a "positive outlook" is not possible. Telling someone that they should be happy when they are not presupposes the idea that we somehow have complete agency over our own emotions- after all, we are perfectly able to change the way we interact with and perceive the world if we just made more an effort to think happy thoughts. This is probably not true of people in general, and it is certainly not true of depre…

Holiday Article about #Fibromyalgia and #ChronicPain

This is an article I wrote about the holidays. Always a good idea to post it early since part of the holidays is shopping other social obligations like work parties and other events.



Intractable migraines

I went to the neurologist office today. I knew going in there was nothing he could do for me because there was nothing he could do for me last time. My migraines have not been responsive to treatment he said. Some people just are not responsive he said. Intractable migraines.

What I wanted was something to hopefully treat the migraine associated vertigo (MAV) angle and the persistent migraine auras. Migraine auras apparently are the same treatment as everything else, so no. And MAV, apparently I have gone through all those medications as well.

So nope, nope, nope.

There will be some of us that will inevitably come to this point. Not many but some. He said the best treatment for us is chronic pain management or pain clinics. If there are no preventatives to prevent then you have to look at pain control. As well as to do things to cope with the pain we have such as mindful meditation, psychology and exercise. So that is the path I will continue to go though.

He did mention I could take…

Motivation? What motivation

Do you ever wonder with chronic pain where your motivation goes? Why accomplishments just seem... meaningless? One does tend to blame the pain itself. Like it sucks the life out of everything but there was a study done that suggests otherwise.



A series of experiments in mice by Malenka and his colleagues, described in a study published Aug. 1 inScience, showed that persistent pain causes changes in a set of nerve cells in a deep-brain structure known to be important in reward-seeking behavior: the pursuit of goals likely to yield pleasurable results. Malenka’s lab has been studying this brain structure, the nucleus accumbens, for two decades.“We showed that those brain changes don’t go away when you transiently relieve the mice’s pain,” Malenka said. The experiments also indicated that the mice’s diminished motivation to perform reward-generating tasks didn’t stem from their pain’s rendering them incapable of experiencing pleasure or from any accompanying physical impairment,…

Need to know? Or not

There seems to be an increasing pressure that somehow, by being sick, we all have an inherent responsibility to educate people about our illnesses and raise awareness whenever and wherever possible. I‘ve been aware of it for some months, but recently, it seems to have resurfaced along with a great deal more discussion in various online groups to which I belong. While there may be many reasons for this, in Australia, a lot of the motivation for increased advocacy and education about illness and disability seems to be happening because, I think, there are far fewer institutionalized awareness programs. The national days/months for various illnesses come out of the U.S., and I’m seeing more people posting and using the colored ribbons that are part of those campaigns. Our own organizations exist as umbrellas for research and different resources pertaining to different diseases and conditions, but not so much for awareness campaigns. (Creaky Joints.) I liked this blog post be…

My #judgement on myself has to Go

This poster is really the form of negativity my brain can get behind but I am trying to avoid. Yet at the same time chronic illness and chronic pain automatically puts you at a disadvantage in so many ways. I want to say I am still worthwhile and I can contribute in my own ways. Because I can. Still, it is less that I think I should because like people judge me, I judge myself.

I had this psychologist that said something very elitist to me once but I wonder if it is the issue I have. He said intelligent people often have a difficult time coping with the loss of their capacity to have a career. Rather I believe we all do. I believe we all struggle with self-worth after we are unable to work in the field we could before or just struggle to work full-time at all. However, maybe there is something to the fact that I judge myself more for it. I achieved this higher education and for what? Nothing. Except the debt load of course. And I had ambitions but my illness no longer allows ambition…

FM and remission in some

I can see this to be true. When we find that path to health often it is lifestyle changes and hard work. Continuously to keep the illness at bay. I just can't say why this works for some and not others.


Abstract
Fibromyalgia syndrome (FMS) is a chronic musculoskeletal pain condition. Although studies have reported that some patients can become healthy again, little is known about what they tell about their lives after having FMS. In this study, we interviewed eight Norwegian women who had all recovered from FMS about their experiences when ill and subsequently being healthy. Inspired by narrative methods, we then conducted a thematic narrative analysis. The findings indicate that although women reported that life was better than before, they also reported investing considerable effort in remaining healthy. When ill, they struggled to maintain the routines of everyday life. Being healthy again, they put great effort into avoiding illness through diet, exercise, and relaxation. In co…

#Ketamine and #Fibromyalgia and #CRPS

Breakthrough Fibromyalgia and CRPS treatment with IV Ketamine
Ketamine has been used for fibromyalgia before but not for CRPS which is an extremely painful condition. I had also not heard of it being done in infusion treatments. It is an interesting treatment option anyway. 
"I have been practicing pain management at the Florida Spine Institute for the last 20 years. I have seen and treated many patients who suffer from back, neck, hip, knee pain as well as chronic pain associated with Fibromyalgia, CRPS/RSD, Lyme, Peripheral Neuropathy, Phantom Pain, and many other conditions." Stated Dr. Hanna.
"IV Ketamine Infusion Therapy is the latest breakthrough treatment that is having extraordinary results. This is an excellent treatment for patients suffering from CRPS/RSD, which is Complex Regional Pain Syndrome. CRPS/RSD is a devastating disease and one of the most painful of conditions. The pain is complex and the patient has a lot of hypersensitivity- even touching the bed …

The #fibro #flare

I am fibro flaring today. I could feel it begin yesterday but thought, well, the weather is turning there is good reason to feel sore. Then this morning, hell, I barely could move when I got out of bed.

I have had people ask me what fibromyalgia feels like and it is a difficult question to answer. Explaining any sort of chronic pain to someone who doesn't experience it is a task. To say the pain can be everywhere or somewhere specific seems sort of weird. It moves. It has a mind of its own.

I generally go with the exercise example but it does fail in some ways. I say imagine you are just beginning to exercise. You go and do some weight lifting and you are feeling awesome. You spend an hour doing it. Then next day? You can't move a muscle because it hurts Everywhere. Every muscle you used is stiff and sore and hurts like hell.

Now imagine:

a) that happened for no reason at all.
b) it happened from doing little household tasks.
c) it happened when walking short distances
d) tha…

Worthless

Sometimes we have negative thoughts we habitually think when we encounter situations. And these thoughts stem from core beliefs. My psychologist was saying I have a core belief that I am worthless. And if you feel worthless already then when you have all those negative thoughts and feel like a burden to loved ones, it makes it so much easier to think of suicide as an option.

I wanted to disagree because I think I do have worth... in some ways. But the fact remains if I look at my negative thoughts that stem around pain... that is what comes out.

If I can't work I have no value to society.If I cannot function then have no real use to people.If I cannot work a real job then I am lesser as a person.I don't want to make a fuss about my pain or health issues because I don't think I am important enough to.I am functionally useless and a burden to those that love me. I could go on, but you get the picture. It stems for decades with chronic pain. Having my pain diminished. Making…