The original quote here is 'life isn't about waiting for the storm to pass, its about dancing in the rain'. And I was like but what if the storm never ends, so this is my take on that.
Chronic pain isn't about waiting for the storm to pass, it is about realizing life is now the storm ... and finding umbrellas.
We have to understand the situation we are in. In a clear and realistic way. I get hoping for a cure in the future, because we all want that, but we have to live in the now. So live with the body you have. Prepare a life with the body you have. Adapt if things get better. Adapt if things get worse.
Finding those umbrellas that make the storm less powerful are vital. Useful coping strategies. Exercise routines we can handle. A good psychologist we can work with. Hobbies we are passionate about. All the things to help us in the storm and decrease our misery in its midst.