Skip to main content

Dear Dr: The doctor who changed my life

Medical physician doctor hands. Healthcare background banner.
Dear Dr: The doctor who changed my life
So I have had a lot of bad doctors in my life. Man I could tell you some stories, my friends. I have also had mediocre doctors and disinterested doctors, who simply were fine for refills of medications but not much else. A good doctor is hard to find. Around here where there is a doctor shortage a good doctor is near impossible to find, because people know it and they are patient heavy and not taking patients on. 
My current doctor though, she is special. I found her because I had a very disinterested doctor who didn't seem all that interested in how I was actually doing. Not willing to do any more than necessary even when things got worse. So I looked, and found no one was available to take on patients. But, then I thought about my spouses doctor who had been managing his Gastroparesis. Who in fact got him diagnosed with it and sent him to the specialist to get treated for it. The one who sent him for a MRI to check on it, just to see what was going on, and caught his kidney cancer in stage 1. The one who could handle my very quiet spouse who does Not like going to the doctor. Ever. I knew she wasn't taking patients but I called to ask since it would be under 'family' and sometimes doctors who are full of patients will take you on if you are related to another patient. So that is what I did, and I got in with her.
Right off the top she did a thorough case history and she was the only one that said, hey, those chronic migraines and fibromyalgia are not playing nice together and you need to go to a pain clinic. I had of course heard about pain clinics, but I had never been referred to one. And that has made a lot of difference. They have put me on painkillers, which sort of help with FM. They had a pain 101 class with other people with pain that was very enlightening. I will be getting botox there for the chronic migraines, even though I get since I was non-responsive the first go around it may not do a thing this go around. I see their psychologist there. Their psychiatrist is the one that pretty much said I am highly sensitive to anti-depressants and cannot be on them, due to the worsening depression and suicidal ideation and put me on Abilify. They are the ones that flat out told me I could not work full-time and I was exceeding my pain limits too much to even do so. That I needed to come to terms with that and understand I had limitations. Although, now it seems I cannot even function part-time. 
The one thing I really like about her is that she is exceptionally thorough. She was the only one that sent me for a bunch of tests to ensure I actually had IBS rather than another digestive disease. She is currently investigating my persistent nausea/vomiting, which could very well be migraine related but it is a concern I am losing weight so she has sent me for tests for that as well. 
She asks and cares about my mental health which has been an issue for me for some time. My previous doctor, after my first suicide attempt, said it was an excessive response to pain put me on a short term leave 'due to stress' and then pretty much wanted me back to work. And I felt... very hopeless at that time. It would have been nice had someone had my back and understood that I was really struggling. And still am. So having a doctor who asks about this is important. You don't ask and I will likely not mention. Just the way I am. I hide my depression and I hide it well. 
She understands the impact the pain is having on me. And the depression due to the pain. Mostly because she listens to what I say and how I say it. Communication is very important between patient and doctor. And hard to find. 

Post a Comment

Popular posts from this blog

Signs the pain is getting the best of you

100 Symptoms of Fibromyalgia

There was a site that had this and I had linked to it on Tumblr but it is gone. So I had to hunt down someone who found my post and posted the whole thing in a forum. Anyway it is around but I'm posting it here so I will not have to hunt it down to reference it. Now we all know the major symptoms are the wide-spread pain, but our pain isn't just muscle pain... it can be nerve types of pain as well, and the fatigue and the insomnia. And even among symptoms there are some far more frequent than others, but it should be said we have categories... like the cognitive dysfunction, which is a broad one that has more than one symptom and we often just say fibrofog. The insomnia... more than one sleeping disorder. So the list is interesting.




GENERAL
__ Fatigue, made worse by physical exertion or stress
__ Activity level decreased to less than 50% of pre-illness activity level
__ Recurrent flu-like illness
__ Sore throat
__ Hoarseness
__ Tender or swollen lymph nodes (glands), especiall…

When I say I am good

When people ask me how I am feeling 99% of the time I am lying. I often say 'not bad', because I feel it is slightly more honest than 'good' or 'fine'. Got sick of fine. Anyway, I lie for many reasons. 



I'm having a good pain day: They happen and I'll say that I'm good, fine, not bad. I even feel like I can accomplish great things... in moderation. In which case, relatively speaking, for Me I am not actually lying. This is a Good pain day, it is Not Bad for me and I am Fine with it. I just don't want to explain: I just don't want to explain how crappy I feel and in which way I mean. Because I am tired of it. I just want to deal with it, without having to discuss it, mention it or have any sympathy expressed about it. Because it can be complicated. It may be a migraine with specific symptoms. Maybe it is a FM flare though. Or both. And then I have to explain what it is because most people think my migraines are the main issue but I could be FM…