Skip to main content

Day 1 HAWMC:You know me

Yes today is the first day of the WEGO health November health activist writing challenge where we will be blogging for the entire month on specific topics. Here is their Facebook page if you want to keep up with some of the top posted each day.
And topic number 1...
“I am more than my scars.”.jpg
Welcome to Day 1 of the November HAWMC! First, let's get to know each other! What drives you to write about your health? What do you want other Health Activists to know about your condition and your activism? Reflect on this for 15-20 minutes without stopping...GO!

You know me, but let's pretend you don't. 

What drives me to write about my health is this need to express the human experience of living with chronic illness and to raise awareness. 

I have a few health conditions from asthma to hypothyroidism. But I focus my awareness efforts on fibromyalgia and chronic migraines. Mostly because the chronic pain aspect of my journey is particularly difficult for me and has led to such things as depression. Chronic pain is extremely difficult to treat and also very difficult to actually get beneficial treatment for it. There is a massive amount of stigma surrounding fibromyalgia and chronic migraines both that needs to be confronted. 

I have been blogging for over ten years now. I can say that in the beginning it was a way to express myself and was rather cathartic. It grew and developed into something where it is important for me to me to relay a message and information. As well as express my experiences and reflect on the difficulties of chronic pain.

You can find me at:
Twitter: @Nikki_Albert
Facebook: Making Invisible Disabilities Visible and Migraineur Mutterings and Musings.
This blog as well as Migraineur Mutterings and Musings.

Post a Comment

Popular posts from this blog

Signs the pain is getting the best of you

100 Symptoms of Fibromyalgia

There was a site that had this and I had linked to it on Tumblr but it is gone. So I had to hunt down someone who found my post and posted the whole thing in a forum. Anyway it is around but I'm posting it here so I will not have to hunt it down to reference it. Now we all know the major symptoms are the wide-spread pain, but our pain isn't just muscle pain... it can be nerve types of pain as well, and the fatigue and the insomnia. And even among symptoms there are some far more frequent than others, but it should be said we have categories... like the cognitive dysfunction, which is a broad one that has more than one symptom and we often just say fibrofog. The insomnia... more than one sleeping disorder. So the list is interesting.




GENERAL
__ Fatigue, made worse by physical exertion or stress
__ Activity level decreased to less than 50% of pre-illness activity level
__ Recurrent flu-like illness
__ Sore throat
__ Hoarseness
__ Tender or swollen lymph nodes (glands), especiall…

When I say I am good

When people ask me how I am feeling 99% of the time I am lying. I often say 'not bad', because I feel it is slightly more honest than 'good' or 'fine'. Got sick of fine. Anyway, I lie for many reasons. 



I'm having a good pain day: They happen and I'll say that I'm good, fine, not bad. I even feel like I can accomplish great things... in moderation. In which case, relatively speaking, for Me I am not actually lying. This is a Good pain day, it is Not Bad for me and I am Fine with it. I just don't want to explain: I just don't want to explain how crappy I feel and in which way I mean. Because I am tired of it. I just want to deal with it, without having to discuss it, mention it or have any sympathy expressed about it. Because it can be complicated. It may be a migraine with specific symptoms. Maybe it is a FM flare though. Or both. And then I have to explain what it is because most people think my migraines are the main issue but I could be FM…