Skip to main content

Day 15 HAWMC

We are on day 15 of the WEGO health activist blog challenge!
Time to spread the love. Shout out all your favorite HA’s! Make sure to share a few sentences explaining just how grateful you are for them
 
 15085534_10154690839854254_5495513182613128825_n

It is great to see a community of bloggers get together and spread awareness about their conditions. Why I love blogathons to be honest. There have been some great posts along the way and some great bloggers.
 
 
 
Dear Dr. What’s-Your-Name… I think I have in fact met this doctor. He and others like him is why I don't go to the ER for status migraines. Because they don't care. They don't treat me. And why when I Didn't go to the ER for a status migraine I ended up with permanent nerve damage. Hell, it wouldn't have made any difference had I gone. Even when I went to My doctor at the time about the nerve damage he said it was likely a form of persistent migraine aura, even though I told him that tactile persistent migraine auras were exceptionally rare and this didn't even feel like that.
 
Dear Yahoo, This may sound silly, but…by Janice Tindle  This one gets extra credit for the rare disease of Visual Snow, which I also have. Used to be considered part of a persistent migraine aura until recent research determined it is its own entity, however, 50% of people with VS actually have migraines as well. Her vision sounds a lot like mine with VS, migraine with aura and persistent migraine auras. I suppose mine is a little funky all the time.
 
Enter Quote, Stage Left… #HAWMC Day 3 This was just one fun post to read.
 
Check out WEGO Health to see more posts or on twitter #HAWMC
Post a Comment

Popular posts from this blog

Signs the pain is getting the best of you

100 Symptoms of Fibromyalgia

There was a site that had this and I had linked to it on Tumblr but it is gone. So I had to hunt down someone who found my post and posted the whole thing in a forum. Anyway it is around but I'm posting it here so I will not have to hunt it down to reference it. Now we all know the major symptoms are the wide-spread pain, but our pain isn't just muscle pain... it can be nerve types of pain as well, and the fatigue and the insomnia. And even among symptoms there are some far more frequent than others, but it should be said we have categories... like the cognitive dysfunction, which is a broad one that has more than one symptom and we often just say fibrofog. The insomnia... more than one sleeping disorder. So the list is interesting.




GENERAL
__ Fatigue, made worse by physical exertion or stress
__ Activity level decreased to less than 50% of pre-illness activity level
__ Recurrent flu-like illness
__ Sore throat
__ Hoarseness
__ Tender or swollen lymph nodes (glands), especiall…

Getting through the high intensity pain flares #Blogboost

The crowded me out of the brain. Making no room for anything else. Distraction was impossible. You feel almost frantic with the pain but must be still.

What do you do? To get through it when you have no distraction?

I ask me this as I am really in the depths of a 9 level frantic level of pain right now. Hoping maybe some writing will be a distraction, but it isn't. As I said, the pain crowds the brain. I have to focus real hard to write and my head isn't clear. Too much pain to focus well. Things become quite difficult to do. 

I will say this: We cannot function. We have to just cope with the pain.

But we are Immersed in the pain, we what do we do?
We can and should rest and get through it the best we can. Here are some of the things I do to get through it.

Relaxation breathing: I can't meditate when in high levels of pain. It just makes me think about how much pain I am in. Just not a good idea. But I do do relaxation breathing. I close my eyes. I focus on my breathing. I even…