Skip to main content

Day 16 HAWMC: Advice to activists

Wisdom Wednesday: What advice do you have for health activists just starting out? Share your words of wisdom for all the health activist rookies out there!
 
Just starting out. Well first thing is pick your platforms you want to use to go with your blog. Too many is never a good idea. For example for my blog I auto-post to Facebook and Facebook auto-tweets to Twitter. And then I post 3 articles and 3 images to my Facebook account and manage my Twitter. That is sufficient. I do auto-post to G+ but rarely manage it. So choose what you like best. Instagram? Facebook? Pinterest, mind you if you do content creation for your blog and Facebook Pinterest is a friend.
 
When it comes to posting my best advice is fourfold: 1) Tell your story in the most honest way possible and to the best of your ability in every post you make. 2) for some posts send a specific message. Design a post like '8 ways chronic illness ____' or '10 ways migraines ____' because those posts are concise and readers do like them. 3) do not fear a good rant post because you need to express that rant as much as other Relate to it and others need to Read it. 4) always source your research

Remember your story is important. Your experiences are important. And your words could make someone else feel less isolated. Could bring other together. Can answer questions people have. Share vital information. You could be the inspiration they need at that very moment. 
 
_to-not-have-your-suffering-recognized-is-an-almost-unbearable-form-of-violence-_
 
Also remember that there is a great community of activists out there. A great community of bloggers as well. Get connected with them. Exchange posts. Share insights. Join groups where they brainstorm ideas and campaigns. Participate in campaigns to raise awareness. You will find a lot of support and great resources from others.
 
So my Blogger Tip for is use images always. For visuals here is an article I wrote Graphic design sites to check out
 
5.jpg
Post a Comment

Popular posts from this blog

Signs the pain is getting the best of you

100 Symptoms of Fibromyalgia

There was a site that had this and I had linked to it on Tumblr but it is gone. So I had to hunt down someone who found my post and posted the whole thing in a forum. Anyway it is around but I'm posting it here so I will not have to hunt it down to reference it. Now we all know the major symptoms are the wide-spread pain, but our pain isn't just muscle pain... it can be nerve types of pain as well, and the fatigue and the insomnia. And even among symptoms there are some far more frequent than others, but it should be said we have categories... like the cognitive dysfunction, which is a broad one that has more than one symptom and we often just say fibrofog. The insomnia... more than one sleeping disorder. So the list is interesting.




GENERAL
__ Fatigue, made worse by physical exertion or stress
__ Activity level decreased to less than 50% of pre-illness activity level
__ Recurrent flu-like illness
__ Sore throat
__ Hoarseness
__ Tender or swollen lymph nodes (glands), especiall…

Getting through the high intensity pain flares #Blogboost

The crowded me out of the brain. Making no room for anything else. Distraction was impossible. You feel almost frantic with the pain but must be still.

What do you do? To get through it when you have no distraction?

I ask me this as I am really in the depths of a 9 level frantic level of pain right now. Hoping maybe some writing will be a distraction, but it isn't. As I said, the pain crowds the brain. I have to focus real hard to write and my head isn't clear. Too much pain to focus well. Things become quite difficult to do. 

I will say this: We cannot function. We have to just cope with the pain.

But we are Immersed in the pain, we what do we do?
We can and should rest and get through it the best we can. Here are some of the things I do to get through it.

Relaxation breathing: I can't meditate when in high levels of pain. It just makes me think about how much pain I am in. Just not a good idea. But I do do relaxation breathing. I close my eyes. I focus on my breathing. I even…